Aromatase Inhibitors: Did you decide to go on them or not?

Posted by nanato6 @nanato6, Oct 12, 2018

Nanaloves: I’m about to start arimidex and just feel that the contraindications , bone issues etc. are overwhelming. I’m 70 years old, dodged a bullet I feel with zero stage DCIS but the follow up is pretty much no different then if it was more aggressive. I’ve just done 33 treatments of radiation and now they advise arimidex as a preventative. I’m not sure with the beginnings of arthritis and lower back. sensitivity already that I should take it. Anyone not take it and not have a recurrence within the 5 years.

@cancersucks How long were you on the AI? I am so struggling with this joint and bone pain. I don't think I can continue.

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@francine6829

@cancersucks How long were you on the AI? I am so struggling with this joint and bone pain. I don't think I can continue.

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Here is my update…went to second oncologist for second opinion. He answered every one of our questions in a neutral tone and normal words. He explained the importance of taking the AI, but, and this is very important to me, he congratulated me trying arimidex twice and now willing to try aromasin. Next greatness: I asked if I could take it every other day and he said that would be great but why don't I do it every third day instead and try for a month then go to every other day for a month as long as the side effects are bearable. Let him know how it's going and if it gets tough just quit.
He is not a doctor who will add on to meds…
Ok, I am in love!
What a difference! So all I want to say is be your own informed advocate!
This site is wonderful!
Moving on, cancer free now

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I will be very interested in how you do on Aromosin. I have been on it for 2 weeks and the joint pain is awlful.

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@batm

I was only on Arimidex for about a month, the side effects were too much; also experienced an increased heart rate. My resting heart rate should be 60-70, its been floating between 83 and 103. Have no history of heart issues, no family history either. Echo was fine, EKG fine, bp fine, bloodwork fine. Seems coincidental that I’m feeling in now. Anyone else have any heart issues during or after Arimidex?? I’m not willing to try any other AI’s until this is resolved, cardiologist agrees.

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It is a known side effect

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@francine6829

What did your oncologist say about you going off of them?

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He wanted me to try another and I chose not to

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@cancersucks

He wanted me to try another and I chose not to

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Since my mammoprint came back very low, my oncologist put me on tamoxifen. He said it has no joint pain associated with it.

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@mimi99

I decided against it. I was diagnosed earlier this year, stage one,
negative nodes. I had lumpectomy and 3 proton beam treatments. I am
currently recovering from reverse shoulder replacement, have had two knee
replacements, lots of arthritis, and fibromyalgia. I am almost 70,
currently taking tamoxifen, and fingers crossed evdrything will go well.

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mimi99 or anyone else on Tamoxifen – I am about to start Tamoxifen because the Ais caused too much joint pain. My doctor said some of her patients had leg cramps and took Magnesium. What is your experience with Tamoxifen side effects

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@francine6829

mimi99 or anyone else on Tamoxifen – I am about to start Tamoxifen because the Ais caused too much joint pain. My doctor said some of her patients had leg cramps and took Magnesium. What is your experience with Tamoxifen side effects

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I was on Anastrozole for about 6 months and had miserable side effects, the worst was brain fog and I broke out in hives. The Hives are a more rare side effect, but my doctor thinks it was the Anastrozole. She switched me to Tomoxifin and the hives continued but not as severely. I ended up seeing an allergist, who put me on a brief course of steroids which cleared the hives completely. I went back on the Tomoxifin after the hives cleared up. However, I think I’d gladly put up with hives rather than the brain fog and issues with cognitive function. More info at: https://www.ncbi.nlm.nih.gov/pmc/articles/PMC2831410/

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lisman1408 – Have you had any other side effects from Tamoxifen other than the brain fog and possibly the hives?

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@francine6829

lisman1408 – Have you had any other side effects from Tamoxifen other than the brain fog and possibly the hives?

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It’s hard to say… I do have some aches and pains in my joints and bones, but I’m not sure what’s causing it. I’m almost 66, and was diagnosed with arthritis about 8 years ago-long before my cancer. I’m not sure if the arthritis is just progressing, or if it’s the cancer meds. This joint pain does seem to be better on the Tomoxifin than Anastrozole, but not enough to draw the conclusion that it’s caused by either medication.

It’s the brain fog that’s the worst for me. I’ve gotten to where I don’t even want to leave my house or interact with others. I repeat myself in conversations and can’t think clearly. I’m very embarrassed by it, so I just keep quiet and stay to myself as much as possible. My oncologist has given me a break for 3 months from the Tomoxifin. My cancer was very slow growing so she felt a break for a few months wouldn’t cause any harm. I do feel better off estrogen reducing drugs, and I believe I can think much more clearly without it.

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@francine6829

mimi99 or anyone else on Tamoxifen – I am about to start Tamoxifen because the Ais caused too much joint pain. My doctor said some of her patients had leg cramps and took Magnesium. What is your experience with Tamoxifen side effects

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@francine6829, you may be interested in these 2 discussions about Tamoxifen:

– What problems have you had with Tamoxifen? https://connect.mayoclinic.org/discussion/what-problems-have-you-had-with-tamoxifen/
– Can anyone speak to the pros/cons of arimidex vs. tomoxifen? https://connect.mayoclinic.org/discussion/can-anyone-speak-to-the-proscons-of-arimidex-vs-tomoxifen-ive-been-on/

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