Anyone with invasive lobular cancer stage 4 that has metastasized?
I had invasive lobular cancer in March 2009. Had a lumpectomy and took aromasin for 5 years. I was told I was clear. It came back and was detected and finally diagonosed in 7/2022. It is stage 4 and crossed from 5"oclock right breast to left lymph nodes. I took Ibrance and anastrozole until 2/6/23. Had double mastectomy and 23/31 left lymph nodes were positive for cancer. New FES PET scan indicated activity in my bones. Has any doctor or patient experienced anything like this?