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jayflo
@jayflo

Posts: 2
Joined: Sep 17, 2018

Anyone taken Actemra/Tolcilizumab for PMR?

Posted by @jayflo, Tue, Nov 6 2:50pm

I was diagnosed with PMR on 8/1/18 and have been on prednisone, then added methotrexate 6 weeks ago, and still have pain, stiffness and spasms in my lower back and hamstrings bilaterally. Rheumatologist wants to start me on Actemra/Tocilizumab, given by infusion once a month. Anyone take this drug for PMR, were there any side effects, and did it work?

REPLY

Hi @jayflo, I thought you might be interested in the following information until a member who has taken Actemra/Tolcilizumab for PMR responds.

Tocilizumab is effective against polymyalgia rheumatica: experience in 13 intractable cases
https://www.ncbi.nlm.nih.gov/pmc/articles/PMC4663453/

Starting Actemra for PMR, RA and GCA looking for others currently using Actemra?
https://www.drugs.com/answers/starting-actemra-pmr-ra-gca-actemra-3129193.html

Mayo Clinic – Tocilizumab (Intravenous Route, Subcutaneous Route) Side Effects
https://www.mayoclinic.org/drugs-supplements/tocilizumab-intravenous-route-subcutaneous-route/side-effects/drg-20073821

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