Anyone out there diagnosed with Pudendal Neuralgia?
I have not been on connect for quite a while since I have only recently received a diagnosis (one of many probably to come) I am looking for someone/anyone who has the pain from a surgical injury of sorts to this nerve to talk to. Is there anyone out there with Pudendal Neuralgia on connect? Thank you!
Interested in more discussions like this? Go to the Chronic Pain Support Group.
I’m on the max dose of neurontin & can’t take lyrica. 🤷🏼♀️
I took Topamax for an unrelated issue and within 2 weeks I got relief. Anti-seizure drugs are nasty, but it was worth the 2 weeks of taking it. See a good pelvic PT. Where do you live?
Thank you very much, I read about Dr Antolak. I believe now he has a private practice. I'm in Florida and traveling to Minnesota for me will be very difficult. Also, if I do, I guess I will have to make leaving arrangements for a few months to get treated by Dr. Antolak. you mentioned you got some relief, so not full recovery???
Hi, my next step is the nerve-block injections with steroids. You mentioned you got some relief from these injections. Can you be more specific to what was the best case scenario (relief lasted for weeks, months). And also you mentioned in some instanced was no relief at all. Any idea why?
I had this monster for 14 years and sat on a donut. The only thing that worked was anti-seizure medicine that I was take off label for an unrelated problem. It was Topamax and worked in less than 2 weeks. Nerve blocks only made it worse with irritation. As about anti-seizure medicine.
Does anyone have Pudendal Neuralgia?
I’m looking for a doctor at the Mayo Clinic that deals with this.
Hi @klm4747, I moved your question to this existing discussion about pudendal neuralgia so you can easily connect with others.
– Anyone out there diagnosed with Pudendal Neuralgia?: https://connect.mayoclinic.org/discussion/anyone-out-there-diagnosed-with-pudendal-neuralgia/
You may appreciate this video with Isabel Green, M.D., and Jenna Miller, APRN, D.N.P., C.N.P., as they talk about the pelvic pain clinic at Mayo Clinic in Rochester, Minnesota.
If you would like to ask about getting an appointment, you can start here: http://mayocl.in/1mtmR63
Jenna Miller has no need to talk so fast. She should slow down by at least 2 words per second to be understood on screen.
did he help you?