Anyone here with Medullary Thyroid Cancer ?

Posted by christys @christys, Feb 22, 2021

I had my 1st surgery in complete thyroid removal in 2017 and 2 more after that.

Interested in more discussions like this? Go to the Thyroid Cancer group.

Hi @christys, welcome to the group. @lindameyerson and @lbhoffman also have experience with medullary thyroid cancer.

Christy, while we wait for others to join the discussion, can you share more about your cancer experience? After the complete thyroidectomy, what did the subsequent two surgeries consist of? How are you doing today?

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The other neck surgeries I had were for complete next dissection's to remove several lymph nodes, then in my sternal notch area. I've had 2 Pet scans, many CT and ultrasound scans since 2017. My MTC is sporadic and is slow growing.

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Diagnosed this year with MEN2A. Had thyroid removed in April 2021. Medullary thyroid cancer and primary hyperparathyroidism.

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@alijua

Diagnosed this year with MEN2A. Had thyroid removed in April 2021. Medullary thyroid cancer and primary hyperparathyroidism.

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Welcome @alijua, I moved your message to this discussion about medullary thyroid cancer so you can meet @christys @lindameyerson and @lbhoffman who also have medullary thyroid cancer.

Ali, do you have other family members who have had cancer? Have you had to have any cancer treatment after surgery?

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Hi Christy
I was diagnosed with sporadic MTC in March of 2017. Three surgeries that year, my cancer is still active.

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@colleenyoung

Welcome @alijua, I moved your message to this discussion about medullary thyroid cancer so you can meet @christys @lindameyerson and @lbhoffman who also have medullary thyroid cancer.

Ali, do you have other family members who have had cancer? Have you had to have any cancer treatment after surgery?

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My 80 yr old uncle had medullary thyroid cancer and that is how we found out about the MEN2A. I have not had any treatment after my surgery in April of this year. My 15 yr old tested positive for the gene mutation and Wednesday she had surgery to remove her thyroid.

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@alijua

My 80 yr old uncle had medullary thyroid cancer and that is how we found out about the MEN2A. I have not had any treatment after my surgery in April of this year. My 15 yr old tested positive for the gene mutation and Wednesday she had surgery to remove her thyroid.

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I cannot believe this your uncle lived 80 years with MTC! there is hope!

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My husband has MTC it's not RET they say it's KRAS G12R. We find out more tomorrow as it has metastasized to his liver now.

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@rodelba

I cannot believe this your uncle lived 80 years with MTC! there is hope!

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Yes gives me hope too. At 80 his cancer had spread so I feel very blessed to have caught mine in time

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@curlywurly

Hi Christy
I was diagnosed with sporadic MTC in March of 2017. Three surgeries that year, my cancer is still active.

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Hi @curlywurly, have you had other treatments in addition to surgery?

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