Anyone here dealing with peripheral neuropathy?

Posted by rabbit10 @rabbit10, Apr 9, 2016
@painwarrior

I’ve been on a Fentanyl patch for years for my peripheral neuropathy. It’s the only thing that works to keep the burning pins and needles feeling at bay. My strength on the patch is 100 mcg/hr. I replace it at the same time every three days. I really can’t survive without it.

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Thanks pain warrior that is interesting solution. I’ll mention it to my doc.!

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Thanks again John I will ask about the patch. Do you also have heavy legs and clumsiness.
My doc tells me to walk but I feel so weak I don’t walk straight. Clumsy like I was drunk. So I do t walk do you get any form of exercise?

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@bobsconnect

I have autonomic/peripheral neuropathy caused by GPA/Wegeners (vasculitis) for 6 yrs. I take gabapentin for the pain and cymbalta for the anxiety that goes along with it. I’m seeing a rheumotologist at Mayo Clinic in Scottsdale, AZ for these and he has also prescribed 50mcg fentanyl patches which has helped immensely. The combination does have side effects, mainly dizziness, which I deal with because of the pain relief benefit. The numdness does go along with neuropathy. That is the next most difficult obstacle. Trying to do anything, especially small is very frustrating. Buttons, zippers, coins, etc. are a nightmare at times. However, I have other health issues to deal with as well. More meds and doctors. It appears as though I will be dealing with this for the rest of my life. I turned 65 last Oct 2015.

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Thanks for your reply grandma41 would mind sharing your essential oil formula? I would like to try it.

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Hi,
The essential oil rub is:1 cup coconut oil the solid type10 drops Valor, 10 drop panaway, 10 drops peppermintMix it all together and store it in a glass jar apply it to areas of pain twice a day, you don’t need much at all because it spreads very well and it’ll last a while. You can also use it more than twice a day if you’d like the brand that I have is Young Living but I think any brand would work as long as its 100% pure therapeutic grade essential oils

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Hi it is actually Valor II

Sent from Yahoo Mail on Android

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@bobsconnect

I have autonomic/peripheral neuropathy caused by GPA/Wegeners (vasculitis) for 6 yrs. I take gabapentin for the pain and cymbalta for the anxiety that goes along with it. I’m seeing a rheumotologist at Mayo Clinic in Scottsdale, AZ for these and he has also prescribed 50mcg fentanyl patches which has helped immensely. The combination does have side effects, mainly dizziness, which I deal with because of the pain relief benefit. The numdness does go along with neuropathy. That is the next most difficult obstacle. Trying to do anything, especially small is very frustrating. Buttons, zippers, coins, etc. are a nightmare at times. However, I have other health issues to deal with as well. More meds and doctors. It appears as though I will be dealing with this for the rest of my life. I turned 65 last Oct 2015.

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Please be careful with the patches. I was on them for a year when I needed
to refill them. The pharmacy’s that are around us were all out. In two days
I went through DT. No a good experience! If you see you have a few let
please make sure you refill. I didn’t take it anymore because of what I
went through. What I’m on now don’t work as well, but good enough. I hope
you get the relief you need.

salena

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Hi – I’ve had peripheral neuropathy in my feet and now legs for a little over 10 years. I’m probably more fortunate than most since mine is mostly numbness and tingling and no sharp pains. My doctors had me on gabapentin for awhile but it did nothing for me and when I discussed it with a new doctor team I was told gabapentin is only for pain and not numbness. I had to have an ECS and MRI before I could meet with a neurologist. The tests confirmed I have nerve damage but we still don’t know the root cause. I have an appointment for May 2nd with the neurologist and I’m hoping to find out what type of neuropathy I have which may help when talking with other people with the same type of neuropathy who have found what works for them. Two excellent sources of information are the MN Neuropathy Association (http://www.neuropathy-mn.org/) and the Foundation for Peripheral Neuropathy (https://www.foundationforpn.org/).

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Gabapenti. Totally helps me sleep, but I don’t like the dizziness it has caused.

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@painwarrior

I’ve been on a Fentanyl patch for years for my peripheral neuropathy. It’s the only thing that works to keep the burning pins and needles feeling at bay. My strength on the patch is 100 mcg/hr. I replace it at the same time every three days. I really can’t survive without it.

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Im glad it helps relieves your pain, I hate to know when someone goes through so much pain. An for the rest of you that is suffering. Ive live with pain most of my life, but not from the same illness, and I dont believe in the degree you suffer.I hope you want be afended if I tell you I will pray for you and the others who are suffering.I admire your stregth. Hang in there!

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@grandma41

Gabapenti. Totally helps me sleep, but I don’t like the dizziness it has caused.

Sent from Yahoo Mail on Android

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I would like to know more about your situation. You must go through a lot.
I had a severe head trauma when I was young, now I have migraine headaches
that causes me to loose conciseness, and I have symptoms of MS. My Dr.
wants me to have an MRI done to rule out that I have MS. There are days I
can walk. So when I have a good day I do as much as I can. Will keep you
posted as to see how you feel, an in my prayers.

salena

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@grandma41

Hi it is actually Valor II

Sent from Yahoo Mail on Android

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I don’t know what that is, is it a brand and where do I get it? Thanks for your response.

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I have been dealing with painful peripheral neuropathy for about 10 to 12
years. My main pain is in the bottoms of my feet but the neuropathy has
worked up to my knees. You talk about a frustrating experience. I
have tried every prescription, compounds, Anodyne therapy, Acupuncture and
Spinal Cord Stimulator. I am on a new and improved Spinal Cord Stimulator
now. I was told when all else fails the last thing they can do is a Pain
Pump. Well I have had that for about 2 years and get a steady dose of
Hydromorphone, Fentanyl and Bupivicaine every day, all day long. I can
also take up to 4 Hydrocodone a day and I also take Lyrica. I have had
Bilateral Endovenous Laser Ablation in both legs and Tarsal Tunnel surgery
on both ankles.

My average pain level is 5 to 6 every day. Now my only hope is that one
of the programs of the new Spinal Cord Stimulator will help. I am
seriously considering going to Mayo Clinic. Would be an expensive trip
from Texas.

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