Anyone here dealing with peripheral neuropathy?

Posted by rabbit10 @rabbit10, Apr 9, 2016

Anyone here dealing with peripheral neuropathy?

Interested in more discussions like this? Go to the Neuropathy group.

I have pain constantly gabapentin really doesn’t seem to work I can only stand for a few minutes bf my feet start to burn any suggestions

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@misselyse7

I have pain constantly gabapentin really doesn’t seem to work I can only stand for a few minutes bf my feet start to burn any suggestions

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Hello @misselyse7, Welcome to Connect, an online community where patients and caregivers share their experiences, find support and exchange information with others. I'm sorry to hear you have not found anything that gives you some relief yet. It can be difficult sometimes for all of us with neuropathy. Until other members join in and share what has helped them you may be interested in reading through the posts in the following discussions to learn what others have shared that helps them.

— Burning feet and legs: https://connect.mayoclinic.org/discussion/burning-feet-and-legs/
— Member Neuropathy Journey Stories: What's Yours?: https://connect.mayoclinic.org/discussion/member-neuoropathy-journey-stories-whats-yours/

The Foundation for Peripheral Neuropathy also has some information you might find helpful – https://www.foundationforpn.org/

Have you discussed your symptoms with your neurologist or doctor to see if they have some suggestions?

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@misselyse7

I have pain constantly gabapentin really doesn’t seem to work I can only stand for a few minutes bf my feet start to burn any suggestions

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Hi it’s misselyse7 I have been diagnosed with small fiber polyneuropathy my feet burn constantly I am also looking for a neurologist in the Atlanta area that is a specialist in this area my neurologist referred me to Emory unfortunately they had terrible reviews and my brain mris are fine my sjogrens test came back in conclusive this is so frustrating and I feel like there is no one to help me I take gabapentin and sometimes it works and sometimes it doesn’t any help would be greatly appreciated

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How much gaba are you taking

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@misselyse7

Hi it’s misselyse7 I have been diagnosed with small fiber polyneuropathy my feet burn constantly I am also looking for a neurologist in the Atlanta area that is a specialist in this area my neurologist referred me to Emory unfortunately they had terrible reviews and my brain mris are fine my sjogrens test came back in conclusive this is so frustrating and I feel like there is no one to help me I take gabapentin and sometimes it works and sometimes it doesn’t any help would be greatly appreciated

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Try kratom. It’s all natural and not addictive. Helps the pain, gives you energy and makes me be more social plus cured my depression. I have taken it for tens years.

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@adam365

Try kratom. It’s all natural and not addictive. Helps the pain, gives you energy and makes me be more social plus cured my depression. I have taken it for tens years.

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Thank you..I will try this…

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@arlenereiss55

What is an SCS implant?

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Hello @kolbe55 you will notice that I have removed your email address. We do this to protect your personal information. You may share those details in an private message to members as you see fit, however.

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@1luckyguy

Thank you..I will try this…

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Yes, I Tk it

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I am having peripheral neuropathy caused by, I suspect, a severe narrowing of the neural foramen bilaterally. My neurologist doesn't seem to believe me. Any of here E E G's s indicate normal deterioration. A new MRI is now ordered. Is there an back operation that will deal with this narrowing. Physio therapist and Osteopath both feel the narrowing is causing numbness. Any thoughts?

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@jeanieweeniexyz

I know that there are others who have scalp itchiness from having Neuropathy (it is that feeling, not pain). My left shoulder is now affected and I have to use a back scratcher to relieve the itch. I have trouble walking, and rely on a rolling walker when I have to leave the house. But I don't have any tingling in my feet as most with Neuropathy have.

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Do you take medicine for Neuropathy? I took Gabapentin for many years but now take Lyrica.

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I have neropathic symptoms (tingling, numbness, involuntary movement) resulting from Guillain/Barre some years ago. It's been determined that I do not have typical neuropothy but show signs of damage of the myelin.sheathing of the peripheral nerves. Has anyone used any OTC supplements that have helped alleviate similar discomfort?

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@judith1045

I have neropathic symptoms (tingling, numbness, involuntary movement) resulting from Guillain/Barre some years ago. It's been determined that I do not have typical neuropothy but show signs of damage of the myelin.sheathing of the peripheral nerves. Has anyone used any OTC supplements that have helped alleviate similar discomfort?

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@judith1045 — The Foundation for Peripheral Neuropathy has a list of supplements known to help neuropathy here: https://www.foundationforpn.org/living-well/lifestyle/nutrition/. I take most of the supplements listed on the site and used to order them through Amazon but now take them as part of the Protocol 525 – Here is a discussion you might find helpful on the Protocol 525 — https://connect.mayoclinic.org/discussion/have-you-tried-the-new-protocol-525-product-for-neuropathy-relief/

Here's an interesting article from 2016 on myelin production:
— Analyzing the role of diet and exercise in myelin production: https://www.mayoclinic.org/medical-professionals/physical-medicine-rehabilitation/news/analyzing-the-role-of-diet-and-exercise-in-myelin-production/mac-20429394

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