Share this:

anyone have lyme disease?

Posted by @mousie23 in Infectious Diseases, Dec 24, 2011

I have been suffering from lyme disease for over 10 years now. I'm looking to chat/talk with anyone else that has it. If so, please respond to this message. If you have any questions about lyme disease, please feel free to respond to this message as well! Thanks and God Bless You!

Tags: Infectious Disease

riazhussain likes this

Posted by @ginus, Mar 4, 2012

I have it. It is quite the challenge. How are you?


Posted by @searching, Mar 25, 2012

Hi, I have Lyme as well and was finally making some progress in getting rid of it when my stomach became intollerant of the medications. I was wondering if you have had any intraveniouos treatments done; or do you know a good doctor that does this. My current doctor said since my diagnosis is clinical he can't do this for me.


Posted by @andersonles, Apr 13, 2012

I was just diagnosed with Lyme disease, but do not know when I was exposed. I only had two bands they read positive on the Western blot assay. I went in due to extreme fatigue & my psychiatrist's suggestion that I investigate the possibility of chronic fatigue syndrome. Before I got my test reults back, I started having joint pain & shooting pains in my legs & now my neck hurts & I've had a headache for 3 days. How do I know what is caused by Lyme disease vs. Something else like allergies or stress? When will I know the antibiotics ate working? Do the symptoms get worse over time or do they just kind of hit at once & linger? I have been struggling with severe short term memory loss. How do I know whether I have early or late stage Lyme disease?


Posted by @bigbird, Nov 7, 2012

I have had lyme for about fifteen years now, was doing alot better when i was on a pic line with antibiotics but the insurance that I had stopped it because Iowa is not a lyme disease friendly state for Dr's that treat with long term antibiotics, science being off the drugs for almost two years now I am back to being worse than I was. Before I was diagnosed with lyme I went through a major work up at mayo, first I as told that i had m.s. than Lou Gehrig's than rheumo arthritic conditions. Even had surgery to release ligement in my elbow for hand pain. All to find out basically on my own that i had lyme and four different coinfections from tick bites. On top of this I gave it to my wife which they tell you that it is not possable....b.s. it is I found out that the bacteria lives in your sexual secreations. Also I have found out people are getting lyme disease and other coinfections from getting blood transfusions because blood is not tested for lyme and other infections because the red cross says it is to costly to check blood for it. At this time there is a bill in congress that everyone needs to read and support also watch the film under your skin to see why so many people with lyme are misdiagnosed so as to line the pockets of Dr's like the ones that work at mayo.


Posted by @bpritikin, Jan 2, 2013

I would be interested in learning more from you. I have tested with 3 positive bands for Igg on the western blot. No mainstream MD will treat me. I believe I have had it for 5 yrs, but symptoms have become quite disabling this past year. Went to Mayo before Xmas and they told me flat out they do not believe in long term antibiotics and would not acknowledge I have chronic lyme. They advised pretty strongly against antibiotics, but I have no other diagnosis.


Posted by @riazhussain, Jun 2, 2013

Hi I want to chat with you

Please login or become a member to post a comment.