anyone have any dietary ideas for person with microscopic colitis?

Posted by karne @karne, Jan 10, 2012

I have seen 3 specialists, my p.care physician, and a homeopathic Doctor….NOT ONE professional has offered me any information regarding diet! I am not lactose intolerant, (been tested) do not have celiac’s, or krohns but…have to think that diet figures into this scenario somewhere…any suggestions? I would like to get on with my life instead of facing each day with the prospect of….will I be “okey” today or will I have diarrhea (there, I said it)….

My mom has ulcerated coliis. Not sure what yours is but I know the foods that irrate the colon are spicy foods, greasy foods and foods with seeds or nuts.

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You can get your life back and you are correct – diet is key to dealing with MC. Please visit the “Potty People” forum where you will find many people who can help you with your question. It is the best site for help with MC on the internet: http://www.perskyfarms.com/phpBB2/index.php 

Please login and introduce yourself.
Feel free to ask any question.

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YES, I definitely have a suggestion!

I had a case of microscopic colitis so severe that I was in diapers. All 10 biopsies in my colonoscopy came back positive. (I tested negative for celiac sprue). Also, although never before allergic to anything, at some point during the attack, I discovered a severe lactose intolerance. I don’t remember the drug the doctor gave me, but it (in combination with another drug I was taking) nearly destroyed my liver within a few short weeks. The doctor actually uttered the words, “…possible… liver transplant…” He also said my ONLY option was a cortico-steroid — with absolutely hideous (and virtually guaranteed) side-effects. When I refused the prescription, his parting words were, “I’ll see you when you give up.”

My husband searched the Internet for a diet, and a doctor on the net (so sorry, we’ve lost the connection) recommended an ALL WHITE FOOD DIET: white potatoes (no skin), white bread, white rice, clear soup. NOTHING with any color. NOTHING to stress the colon. For me, since I was then lactose intolerant, it also meant no milk, yogurt, or cottage cheese. It was a very difficult diet to adhere to, but every time I gave in to temptation, the diarrhea returned. I lost another 10 pounds in addition to the 20 I’d already lost from the disease, but positive results were noticeable almost immediately. It took about three weeks of strict adherence to the diet to make the diarrhea go away completely, but it DID! Also, my lactose intolerance eventually went away as well.


The other thing I did was take heavy doses of high quality probiotics ($$$ !!) for several months. I also had the luxury of being able to spend most of my time resting.

It is now six years later, I am eating a full and healthy diet, and I have had NOT ONE single bout of diarrhea since! My “incurable” disease certainly seems to be completely gone.

I don’t know what brought on your disease, but I’m fairly certain mine was caused by extreme stress (and perhaps unhealthy additives in my food). Now, when I feel stress building, I just quit doing anything not absolutely necessary and rest. I am also very particular about my diet, eating mostly organic foods, plenty of fresh fruits and vegetables (LOTS of color and variety now that I’m healthy!) and virtually NO meat.

I wish you the best. If you are not yet cured and decide to try this diet, please let me know if it works for you.

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@ediep

YES, I definitely have a suggestion!

I had a case of microscopic colitis so severe that I was in diapers. All 10 biopsies in my colonoscopy came back positive. (I tested negative for celiac sprue). Also, although never before allergic to anything, at some point during the attack, I discovered a severe lactose intolerance. I don’t remember the drug the doctor gave me, but it (in combination with another drug I was taking) nearly destroyed my liver within a few short weeks. The doctor actually uttered the words, “…possible… liver transplant…” He also said my ONLY option was a cortico-steroid — with absolutely hideous (and virtually guaranteed) side-effects. When I refused the prescription, his parting words were, “I’ll see you when you give up.”

My husband searched the Internet for a diet, and a doctor on the net (so sorry, we’ve lost the connection) recommended an ALL WHITE FOOD DIET: white potatoes (no skin), white bread, white rice, clear soup. NOTHING with any color. NOTHING to stress the colon. For me, since I was then lactose intolerant, it also meant no milk, yogurt, or cottage cheese. It was a very difficult diet to adhere to, but every time I gave in to temptation, the diarrhea returned. I lost another 10 pounds in addition to the 20 I’d already lost from the disease, but positive results were noticeable almost immediately. It took about three weeks of strict adherence to the diet to make the diarrhea go away completely, but it DID! Also, my lactose intolerance eventually went away as well.


The other thing I did was take heavy doses of high quality probiotics ($$$ !!) for several months. I also had the luxury of being able to spend most of my time resting.

It is now six years later, I am eating a full and healthy diet, and I have had NOT ONE single bout of diarrhea since! My “incurable” disease certainly seems to be completely gone.

I don’t know what brought on your disease, but I’m fairly certain mine was caused by extreme stress (and perhaps unhealthy additives in my food). Now, when I feel stress building, I just quit doing anything not absolutely necessary and rest. I am also very particular about my diet, eating mostly organic foods, plenty of fresh fruits and vegetables (LOTS of color and variety now that I’m healthy!) and virtually NO meat.

I wish you the best. If you are not yet cured and decide to try this diet, please let me know if it works for you.

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I like what your suggestion is and am going to try it. I am so tired of being trapped in the bathroom.

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I am still taking meds to rid myself of the microscope colitis. I have anxiety about what is going to happen bathroom wise. Makes it harder with Covid. I sometimes take half of an Imodium and I get through the day great. More later on diet changes I made

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@vacres I was recently diagnosed with microscopic colitis. What kind of diet do you follow? I take prescription lomotil daily, up to 8 a day depending on my stomach and I still stay a hands length from a bathroom!

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@suzanne2

@vacres I was recently diagnosed with microscopic colitis. What kind of diet do you follow? I take prescription lomotil daily, up to 8 a day depending on my stomach and I still stay a hands length from a bathroom!

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Try FUNGUS CLEAR on Amazon- It regulates you. I was looking at surgery before I found it You will go normal

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@redill Welcome to Mayo Clinic Connect! I am sorry to hear that you are having bowel issues that cause constant bathroom trips. Dealing with a diagnosis like that can not only be uncomfortable, but very inconvenient. Where you diagnosed with Microscopic Colitis or another form of bowel syndrome?

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@suzanne2

@vacres I was recently diagnosed with microscopic colitis. What kind of diet do you follow? I take prescription lomotil daily, up to 8 a day depending on my stomach and I still stay a hands length from a bathroom!

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Before I knew I had MC I was talking 4 lomotil a day. I gave up all caffeine, no ibuprofens, no Prolesec. No wheat bread, no Spicey foods. Ate eggs, white bread, ground turkey burgers, chicken soup and bananas. Got better down to 1or 2 lomotil a day. When I finally got to see a gastroenterologist he did a colonoscopy/ biopsy. And I had microscopic colitis. The prescription: 9 mg of budesonide for 30 days, 6 mg of budesonide for 30 days an finally next Thursday I start the last 3 mg of budesonide to end the meds. I have added turkey, chicken and pork, vegetables spaghetti with sauce and hav not had a bout of the uncontrollable in six months. Still get the feeling once in awhile ( in my head maybe) but stopped the need to be real near a bathroom

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@vacres That is amazing! I applaud your control. I have been at 8 lomotil a day and still need to scope out where bathrooms are. Hoping the budesonide will start working. I actually had to go to Mayo Clinic this summer to get my diagnosis. Been living like this since 2016.

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I am glad you are taking the budesonide. Hope it works well for you

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I don't take Entocort. The first time I was on it, it worked for me. The next time it didn't work. Now my doctor wants me to go back on it. Medicare doesn't cover this medication and the least it can be gotten for here is over $1,253.00 for a month. I can't afford a drug that expensive, especially when it didn't work the last time. I have been on so many different medications and nothing works for me. I have not been able to find a doctor that specializes in microscopic colitis. If any body knows of a good GI in or near Waukesha, WI, please forward their name and number, if possible.

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@colski At least you may be able to get into Mayo MN… I am on Medicare with a Gap Insurance and I go to Mayo MN in Rochester every year..

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