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grlucky

anybody there to talk about breast cancer and treatment and life afterwards.

Posted by @grlucky in Breast Cancer, Jun 6, 2012

anybody there to talk about breast cancer and treatment and life afterwards.

Tags: Cancer, Breast Cancer, treatment options, treatments, survivorship

fissy81056 likes this
wayneaj56

Posted by @wayneaj56, Jun 20, 2012

Hi,GRlucky
I might not be much help I never had cancer but my mother died from breast cancer and I took care of her in our home and was with her the whole way from the begining. If I can help in any way I'd be more than happy to answer any questions for you.

fissy81056 likes this
luckythree

Posted by @luckythree, Dec 2, 2012

I had a lumpectomy & first lymph node removed. I'm having trouble where the Lymph node was removed. with swelling?

fissy81056

Posted by @fissy81056, Dec 2, 2012

go back to the doctor, explain to him or her what is bothering you and demand an answer

luckythree

Posted by @luckythree, Dec 3, 2012

Thank you very much for responding..I have an appointment with the Dr and the Oncologist the same day.

sewhappy

Posted by @sewhappy, Jun 25, 2012

Hello GRlucky, I had breast cancer 2x, last month it came back. I have good days or hours and some not so good. I feel strong and ready to tackle a few more years, to many people need more,
sewhappy

kJean, jezza, fissy81056 like this
fissy81056

Posted by @fissy81056, Dec 2, 2012

Bless your heart, I am praying for you. When was your first cancer diagnosed?

lucky three likes this
fissy81056

Posted by @fissy81056, Dec 2, 2012

I was 37 and had a third stage breast cancer, I was so scared being a single parent with a 16 year old. I fought like crazy, a total masectomy, radiation and 5 years of Tomoxifan, I won, that was in 1996. At first it was diagnosed as a cyst, I knew it was something more and I insisted on a needle biopsy, then I was told it was a first stage breast cancer, after a lumpectomy, I returned for follow up and was then told they did not get all of the cancer..that led to the treatments I mentioned earlier.....it was a long and tough road, alot of prayers healed me.

jezza likes this
jezza

Posted by @jezza, Dec 2, 2012

I have had a lump in my boob for over a year when i had first noticed it i didnt panic as i was only 30 i presumed it was hormonal cyst or something like that. i had got it physically examined by my Dr who also assured me it was hormonal and may correct itself. A year had past and i was telling my sister inlaw about it and how i really should get something done about it as its gotton alot bigger, she was horrified and jumped to cancer straight away, i laughed and said no its just something that needs draining or whatever. She rang me at work on the 19th of october which was breast cancer awareness day and demanded me to make my appointment, so i did. I had a mamo then ultrasound where i was very fortunate to get a very good looking doctor (always a silver lining in every situation that was mine lol) he then proceeded with a biopsy. Two days later i had a call to go see my Dr never crossed my mind that whole time that it could be cancer was expecting her to talk about the whole draining proceedure i had been satisfied with for a whole year. I sat there for what seemed like 5 minutes looking at the word milignant thinking no im sure thats the good one, i will google that later lol.
I have since had another biopsy where it has been graded as 3, the only answer i got back from that biopsy the rest i have to wait till after my surgery where they will do other tests to confirm stages and of course to find out if its travelled to lymphs.
My surgery app is 13th of December lucky its not on a friday 😉
There is always somebody facing a more frightening situation then mine im thinking and wishing for your very best, everyday xx

luckythree

Posted by @luckythree, Dec 3, 2012

Hang in there and stay positive..I'm wishing you the very best..Stay strong !

wayneaj56

Posted by @wayneaj56, Jun 20, 2012

Hi GRlucky,
I don't have breast cancer but my Mother did and I took care of her from the beginning. I was just a kid back then, a young teen but I was there for her at the doctor,hospital, treatments and then took care of her in the house. I might be able to answer some question for you if you need someone to ask, I'll do my best to help you. Im disabled right now so I'll be here all day if you need me. Later Gator ! @grlucky

jaeleam

Posted by @jaeleam, Oct 22, 2013

I found a hard, flat spot in my L breast in April, 2011. My GYN said, "I've seen dozens of these in 24 years and it's hardly ever cancer. But we'll get another mammogram and maybe a biopsy." The Radiologist that I saw later next day kept saying, "if it's cancer, blah, blah, blah. I'm not saying it's cancer, but IF it's cancer, blah, blah, blah." I'm no fool. I knew then that it was cancer even though I was given a 50/50 chance. After the holiday weekend, I went in for a biopsy. Next day I got a call from a surgeon's office (I had never seen him.) Nurse asked if anybody had called me. "No." Somebody would call me later on that day. About 3:00 pm my phone rang. The nurse navigator called and said, "I have your results. Unfortunately, it's not the results you wanted." I was livid. I was so angry that I could have been deceived by a mammogram only 6 months earlier. I do not trust mammograms.
I had a lumpectomy in May, 2011. The surgeon told me he was going to take the sentinel node "and maybe 1 or 2 others." I woke up in pain like nothing I had ever experience in my life. I was sobbing, begging the nurses to stop the pain. The response was: "You've got to get control of yourself." "You've got to calm down." "He did a lot of work." Wasn't it enough that some radiologist determined that I had BC? Did they have to add insult to injury?
As it turned out, the surgeon took 12 lymph nodes. Again, some radiologist determined that the sentinel node was positive. The fluid began building up in my armpit. The drain plugged up and fluid ran down my side. I wrapped a towel around my waist to catch the fluid. I saw the surgeon while crying bitter tears. My arm wouldn't even fit against my side. That's the day he told me he was leaving for vacation in Israel for 3 weeks and would see me again in 4 weeks. He didn't leave any doctor on call for his patients. I saw nurses in his office for four weeks. They drained my armpit about every other day. I got an infection that lasted for weeks. The surgeon returned and inserted another drain. He removed that about 10 days later.
Three or four doctors got in on the case and all were telling me that if I didn't have radiation I would surely have a recurrence. I said, "ABSOLUTELY NOT!" I had read enough about radiation to the left side to know that my lung and heart would be involved and that my breast would probably get infected because I am very fair skinned and very delicate. NO, you cannot burn me up. My nipple would have been involved and NO, you cannot burn up my nipple. I refused Chemo that was offered at another clinic.
I became very depressed and even suicidal because of the pain, swelling and inability to use my arm like normal. I was even hospitalized for depression. I take medication for it.
My tumor was 1.6 cm and the tumor in the lymph node was .8 mm. The doctor said he got clear margins. I was 66 years old. I will take my chances with Arimidex. Nothing more.
This is October, 2013. I am almost 69. I take vitamins and supplements from pharmacy grade companies. I walk 30 minutes every day.
The deep hole in my armpit will always be there. I just completed another 16 physical therapy treatments. At least this time I got a LPT that really knows the body and what to do for a case like mine. I can actually lift my arm over my head and reach behind me to fasten a bra! That's progress I never had before I met her. I previously had 36 PT treatments that were basically useless because of lack of knowledge of assistant physical therapists. I still have some cramping and burning in my arm, but will continue stretching exercises. It's so much better than it was.
The strangest thing that has happened to me is: my surgical breast is now about 1 inch larger than the other one! I went for a bra fitting yesterday and came home with a "balance part" for the right side in order to make my breasts appear to be symmetrical. I haven't heard of that, but I knew I was "lop-sided." I feel normal now. My balance has improved. Before I got the fitting I was having some trouble with balance. I would start to walk straight and find myself leaning to the right side!
I know my story is long, but you asked for what to expect. I say that if it could go wrong with me, it went wrong. I don't know what the future holds. All of my recent blood tests (complete work up) were within normal range. My oncologist said that I don't need to go to the cancer clinic. I will just see him every 4 months as scheduled. My DO is wonderful. He keeps track of everything else that's going on with me. I'm grateful for DO's.

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