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am i possibly having seizures or another neurological condition?
i’m 23 female with POTS and Endometriosis and i’ve had a ton of concerning symptoms start 2 months ago ever since i stopped taking 20 mg Amitryptaline for migraines.
Right after i stopped taking the medication i started having these random episodes where i first felt a sense of doom, i would get super dizzy and parts of my body or face would spasm. it’s really hard to think during these episodes but i am responsive. i usually taste metal during these episodes and throughout the day. i also have head pressure during these episodes and every day on and off. these episodes last anywhere from 10 minutes to 3+ hours and after i’m exhausted and it’s hard to think and i feel weird.
the worst episode i had of these was when i fainted 7+ times in a row and lost control of my bladder and was hospitalized. they did tons of tests on me and did a shorter eeg but it was normal. the only problem was i have a randomly high heart rate all the time so i now take metoprolol which helps.
these episodes happen randomly with no pattern and it’s ruining my life. no one knows what’s going on with me. has anyone had this happen and if so what was it?
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Go to a neurologist he can tell you
Same thing happened to me after I stopped taking Lyrica. The sense of doom was actually the norepinephrine flooding my system following cessation of the medication. This fight or flight survival chemicals flooding your body in an attempt to rewire the brain once the medication was removed. Really scary for me but after a couple of weeks off of it, my body is returning to normal. Being around people, staying connected to things of joy and lots of self care. I learned my lesson with that one. Be patient until your body adjusts!
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1 Reaction@clendenin thank you! i’m happy you’re better.
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1 Reaction@bunnygirl222, Sorry about you medical mystery. I've been having seizures since I was in the 4th grade, maybe 1955 or so, but the migraines started in '53 or so. I did get a diagnosis on the migraines some time in high school, I think, and they were frequent and debilitating. You may be very surprised that no one can nail down a diagnosis and treatment for what sounds a bit like the partial complex seizures I had all thru my years in school. I really only was diagnosed as a result of having my first grand mal. The neurologist I saw after the grand mal was a bit of a researcher & scientist. He gave me a 2-hour test with sound, light and movement and induced enough brain behavior to see a seizure happening. Five-plus seizures later I can tell you I've had a ton of EEGs and MRIs and none have shown any activity at all, even the MRI done within the same hour. Those early seizures were a real mystery. It took me decades to come up with a reasonable description of the physical feeling: A current that ran thru the body, foot to scalp, back down, all the while feeling goosebumps and my mind sort of floating, weaving. A feeling that left me weak and tired. The really strange thing is that my migraines were stress related it took me years to realize that the seizures all happened with larger, more stressful incidents, such as a death, or major crises in my life. Maybe you could join one of the seizure groups on Mayo Connect and get other folks' opinions, too.
Wishing you well. Betty.
@bruizersmom wow thank you so much
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