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hope4vickie
@hope4vickie

Posts: 2
Joined: Jan 17, 2017

After Bone marrow transplant

Posted by @hope4vickie, Jan 16, 2017

Hello after my mother had her 2nd bonemarrow transplant because the first did not work, a few weeks after she was dillusional and went in to a mental state and eventually fell asleep for 4 days and then ended up being put on a ventilator its now day 3 with ventilator and in next couple days they are going to when her off and reduce med to see if she responds she get very aggitaited when the meds are reduced she does move her arms but they restained them so she don’t pull out anything. Dr. says in next few days they will remove all and if anything fails we should pull the plug. I could never do that to my mom I miss her daily talked on phone daily and miss her so much all though she is still here just very ill. however all test has come back neg. Im praying she wakes up in the next couple days. eeg came back slow brain waives mri came back good there is no signs that she is brain dead. if you been through this or know of someone please share some thoughts . thank you

REPLY

Dear @hope4vickie, I am so sorry that you find yourself in this situation. I truly hope for the best.
I’m going to tag @IndianaScott on this message. While he hasn’t been in the same situation, he knows first-hand what it is like to watch a loved one suffer and the hard decisions that come with caregiving.

It has been 15 hours since you posted. Have there been any developments?

@colleenyoung

Dear @hope4vickie, I am so sorry that you find yourself in this situation. I truly hope for the best.
I’m going to tag @IndianaScott on this message. While he hasn’t been in the same situation, he knows first-hand what it is like to watch a loved one suffer and the hard decisions that come with caregiving.

It has been 15 hours since you posted. Have there been any developments?

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Thank you nothing has changed since yesterday she is stable but has yet to wake only when they reduce meds she opens her eyes and looks at us but is very agitaited. I have not figured out a way to see if other drs. From another area would be able to look at her. Thanks again

So good to hear from you @hope4vickie. Would you like to see if you can consult with doctors at Mayo? If yes, please call the numbers on this webpage http://mayocl.in/1mtmR63
Which Mayo location is closest to you — MN, FL or AZ?

Hello @hope4vickie Good to e-meet you here. Colleen is right, while I have not been in the identical situation as you are with your mom, my wife was in a coma for three weeks after her brain surgery. Unexpected, but …

Waiting is beyond hard! We talked with my wife constantly and played some of her favorite songs while she was in her coma. She eventually did ‘wake up’ from it, but had lasting psychological and physical challenges. Some she was able to remediate, some not.

It is a tough time to be strong, but being there is what counts. I believe my wife knew we were there even though she did not remember anything about it.

We had to make many difficult end of life decisions later in her care so if you want to ‘talk’ with someone about those, I am here.

Peace, courage, and strength

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