Acupuncture helpful for peripheral neuropathy (PN)?

Posted by wisfloj @wisfloj, Tue, Aug 20 8:52am

18 sessions, twice a week and feeling it’s a waste of time and money. Still have good days and bad, trying PEA also, but would like to hear if acupuncture worked for anyone and perhaps I need to continue….? I guess trying one solution at a time is wiser. Thanks for sharing your experiences.

@wisfloj

Well I was going to a 'community acupuncture center', so for all of July my sessions were only $10 each and other times I would pay $15 or $20. So not too much loss other than my driving time. The acupuncturist was saying because I’ve had it so long (18 mo.)🤔 it’s going to take a while. I bought that until last Thursday when my worst days were Thursday Friday Saturday but Sunday was better. I am 75 % sure I won’t return unless other members weigh in here and tip my decision towards continuing. Thanks to you three!

Jump to this post

I tried acupuncture regularly for months and never saw any difference in my pain level. I suffer from severe pudendal nerve entrapment and have for about 17 years.

REPLY
@palmorejs

I tried acupuncture regularly for months and never saw any difference in my pain level. I suffer from severe pudendal nerve entrapment and have for about 17 years.

Jump to this post

@palmorejs Have you tried myofascial release? It can help. I do this myself for a different nerve entrapment issue and it helps me a lot. It is listed as being able to help pundental nerve issues. Here is our discussion where you can find lots of information. https://connect.mayoclinic.org/discussion/myofascial-release-therapy-mfr-for-treating-compression-and-pain/

REPLY
In reply to @burningfeetinphoenix "I am trying PEA also!" + (show)
@burningfeetinphoenix

I am trying PEA also!

Jump to this post

How has the pulseless electrical activity (PEA) gone for you thus far, @burningfeetinphoenix?

REPLY

That's not the PEA I am using. I am taking Palmitoythanolamide (PEA) capsules and and ordered the topical PEA that is now being manufactured in the US. According to another member, it takes a while for the PEA to work. I have been on it less than 2 weeks. I am hopeful. There are many good papers and studies on it, Has been used for years in Europe and the UK as have many of these alternative treatments…Do you know anything about the Calmare machine (AKA "Scrambler")? I've have read some good studies on it and one paper by Thomas Smith from John Hopkins and it is endorsed by him and the Mayo… seems promising. My podiatrist had one. Thanks, Pam

REPLY

Pam, I had 20 sessions of Calmare/Scrambler therapy. Ten at one time, and then 10 about a month later. It lowered my pain from about a 7-9 on the pain scale, to about a 5-6, on the pain scale. I also have pain much less often. What it did not do, is help odd neuropathic things that I have in my toes. My toes still feel oddly stretched, yanked, exhausted, etc. I feel like I have socks bunched in my shoes at times, or other odd feelings. However, all in all, I am in much less pain, and that is wonderful. Good luck…. Lori Renee

REPLY
@burningfeetinphoenix

That's not the PEA I am using. I am taking Palmitoythanolamide (PEA) capsules and and ordered the topical PEA that is now being manufactured in the US. According to another member, it takes a while for the PEA to work. I have been on it less than 2 weeks. I am hopeful. There are many good papers and studies on it, Has been used for years in Europe and the UK as have many of these alternative treatments…Do you know anything about the Calmare machine (AKA "Scrambler")? I've have read some good studies on it and one paper by Thomas Smith from John Hopkins and it is endorsed by him and the Mayo… seems promising. My podiatrist had one. Thanks, Pam

Jump to this post

@burningfeetinphoenix – thanks for clarifying the PEA you are using for treatment.

Glad @lorirenee1 connected with you here about the Calmare/Scrambler therapy. Here is another whole discussion on that therapy, if you want to check it out https://connect.mayoclinic.org/discussion/calmare-scrambler-therapy-anyone/

This is written for medical professionals, but here is the abstract of a multicenter analysis of predictive factors of success (or not) for Calmare/Scrambler therapy https://www.ncbi.nlm.nih.gov/pubmed/25232861

Are you considering pursuing this therapy?

REPLY
@lisalucier

@burningfeetinphoenix – thanks for clarifying the PEA you are using for treatment.

Glad @lorirenee1 connected with you here about the Calmare/Scrambler therapy. Here is another whole discussion on that therapy, if you want to check it out https://connect.mayoclinic.org/discussion/calmare-scrambler-therapy-anyone/

This is written for medical professionals, but here is the abstract of a multicenter analysis of predictive factors of success (or not) for Calmare/Scrambler therapy https://www.ncbi.nlm.nih.gov/pubmed/25232861

Are you considering pursuing this therapy?

Jump to this post

Right now I am just researching alternatives. Just diagnosed with SFN. Learning a lot. My Dr wants to do Exosome injections. Even more pricey…thanks for sharing this info. Very helpful.

REPLY

I did do acupuncture but once every other month been more than six months since I had one done

REPLY
@jacobwill

I did do acupuncture but once every other month been more than six months since I had one done

Jump to this post

@jacobwill – did the acupuncture give you any relief from the neuropathy?

REPLY

I have had 2 sessions of acupuncture a week apart. My neuropathy is chemo induced. I am starting chemo again this week. The idea behind me having this is to prevent the neuropathy from worsening with additional chemo as much as helping reduce it. I don’t know how long I will last trying it. Medicare won’t cover it and acupuncture at Mayo Clinic isn’t cheap. I can’t say that it has helped the existing neuropathy at all so far. In fact, I’m trying very hard to convince myself that it isn’t slightly worse even before this next round of chemo starts. But my life has been all out of whack due to traveling for a family funeral and the addition of multiple dr. Appts. I haven’t been able to walk as much so perhaps that's responsible.
I don’t know how many needles she is using. She has put some in my ears, from my elbows down and my lower legs down. I had no idea what to expect. It doesn’t hurt at all but I’m not convinced it will help. I wonder if being a nonbeliever makes a difference like if you believe it won’t work, it doesn’t?

REPLY

cwm1@cwm1 I too am trying acupuncture. I had my first session last Wed and I go for a 2nd session today. My first session was more uncomfortable than it should have been. She put needles in my head and it did hurt. I didn't say anything until she came back into the room. My head, my eyes, my teeth, and my head were hurting. I told her and she said it was my sinus as the needles did something. I really don't know what she said, but anyhow I am going back today with an open mind. It is expensive and she does not take insurance. With my pain from neuropathy, fibromyalgia, lymphedema.I am willing to give it a try. While I am here, can anyone tell me about lymphedema and what they are doing for it. I have it in my left leg. The doctors are saying it is idiopathic just ass they say my neuropathy is. I don't have diabetes and have not had cancer. I find it concerning that I have two medical conditions that they say are idiopathic. The doctors really did little testing to look for a reason for both conditions. Have you are other group members have this issue.

REPLY
@summertime4

cwm1@cwm1 I too am trying acupuncture. I had my first session last Wed and I go for a 2nd session today. My first session was more uncomfortable than it should have been. She put needles in my head and it did hurt. I didn't say anything until she came back into the room. My head, my eyes, my teeth, and my head were hurting. I told her and she said it was my sinus as the needles did something. I really don't know what she said, but anyhow I am going back today with an open mind. It is expensive and she does not take insurance. With my pain from neuropathy, fibromyalgia, lymphedema.I am willing to give it a try. While I am here, can anyone tell me about lymphedema and what they are doing for it. I have it in my left leg. The doctors are saying it is idiopathic just ass they say my neuropathy is. I don't have diabetes and have not had cancer. I find it concerning that I have two medical conditions that they say are idiopathic. The doctors really did little testing to look for a reason for both conditions. Have you are other group members have this issue.

Jump to this post

Hi, @summertime4 – here is one discussion on lymphedema on Connect you might check out https://connect.mayoclinic.org/discussion/lymphedema-in-legs. You may want to search for "lymphedema" on Connect (click on magnifying glass icon at the right top of any Connect page), as there are different discussions on it depending on what the source of it may be.

How are you feeling about continuing with acupuncture after you experienced the pain in your head from the needles? How did the second session go?

REPLY

@lisalucier Thank you so much for steering me in he direction of the lymphedema site. I have already looked and will also join. Very good information from the group. Yes, I returned to acupuncture yesterday. It went very well. Tina, the therapist sat down with me and we talked about last week's session and how the week went. I told her her was feeling better, with more energy and lighter mood. I told her that I believed it was because I have been taking Melatonin and have been sleeping better. She smiled and told me she had worked on my anxiety and mood last week and feels that might have helped also. Ah, I said, maybe the combination of the two. I let her know that I preferred no needles in my head. She was fine with that and we preceded to acupuncturing me. I felt a little out of it when I left which may have been that I relaxed this time. I do not have an appointment next week because my daughter will be home for her vacation and spend a week with me. She lives in Ohio so I want to spend the time with her. I pray that adding acupuncture to the mix of medications to decrease my pain will do that. I will stay with it for at least the 6 weeks. I may have to space it out after that because insurance is not paying.

REPLY
Please login or register to post a reply.