Achalasia

Posted by amoll157 @amoll157, Feb 2, 2017

45 year old male. Had 2 heller myotomy surgery and I need another one. My lower LES is closing again. This sickness is breaking me down slowly. Life has change from happy to pain and struggling to eat anything. Been to ER 3 times to remove steak. Than rice now bread. I’ve tried everything. Had 3 dialations

@bilobabe

Hi, I’m over 86 and am told no surgery. Eating was always an enjoyable time … no longer. I can get food into stomach by turning head extreme left to swallow food or liquid. Sounds easy enough. But I have to chew on left, move food to center, get ready to swallow, turn head near shoulder LEFT and turn right back to close the sphinter muscle. Over and over again. Doc suggested I eat alone, not with hubby, no tv, no distractions …. even then my mind wanders ….. but it must not. Who wants to eat like that? Hubby is into 9th year of Alzheimer’s and I’m his caretaker. So …. I try.

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@jimhd Hi Jim, Keep us posted on your progress with the new therapist as well as with the the spinal cord stimulator. I’ll be praying for you. Teresa

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@bilobabe

Hi, I’m over 86 and am told no surgery. Eating was always an enjoyable time … no longer. I can get food into stomach by turning head extreme left to swallow food or liquid. Sounds easy enough. But I have to chew on left, move food to center, get ready to swallow, turn head near shoulder LEFT and turn right back to close the sphinter muscle. Over and over again. Doc suggested I eat alone, not with hubby, no tv, no distractions …. even then my mind wanders ….. but it must not. Who wants to eat like that? Hubby is into 9th year of Alzheimer’s and I’m his caretaker. So …. I try.

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@hopeful33250 and everyone else.

My granddaughter #2 was born 30 minutes ago! I’d share a picture if I knew how. Kaitlyn Rose is her name.

Jim

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@bilobabe

Hi, I’m over 86 and am told no surgery. Eating was always an enjoyable time … no longer. I can get food into stomach by turning head extreme left to swallow food or liquid. Sounds easy enough. But I have to chew on left, move food to center, get ready to swallow, turn head near shoulder LEFT and turn right back to close the sphinter muscle. Over and over again. Doc suggested I eat alone, not with hubby, no tv, no distractions …. even then my mind wanders ….. but it must not. Who wants to eat like that? Hubby is into 9th year of Alzheimer’s and I’m his caretaker. So …. I try.

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@jimhd How wonderful, Jim. Congratulations to Kaitlyn Rose and the whole family! Teresa

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@bilobabe

Hi, I’m over 86 and am told no surgery. Eating was always an enjoyable time … no longer. I can get food into stomach by turning head extreme left to swallow food or liquid. Sounds easy enough. But I have to chew on left, move food to center, get ready to swallow, turn head near shoulder LEFT and turn right back to close the sphinter muscle. Over and over again. Doc suggested I eat alone, not with hubby, no tv, no distractions …. even then my mind wanders ….. but it must not. Who wants to eat like that? Hubby is into 9th year of Alzheimer’s and I’m his caretaker. So …. I try.

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Congratulations @jimhd, that is awesome news

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@kanaazpereira

Hi @amoll157, @jimhd, @bilobabe, @fjg827,

You might be interested in this very recent update from Mayo Clinic about a procedure know as POET (Peroral endoscopic tumor resection), which has been been shown to achieve very successful outcomes in the treatment of esophageal motility disorders such as Achalasia. You can read about it here:
http://mayocl.in/2mxsMJ7

Hope you find this helpful.

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I am very interested in this subject as I too suffer from it. But first, congrats to the new grandparent. And I am so sorry for what all of you are going thru. My swallowing problem started when I was a teenager. I am 75. At first it was just some kinds of meat but it gradually worsened. In my late 20’s I had a few weeks when I could not eat at all. After neurological tests, the doctor said he didn’t know, just hoped it didn’t get worse. I have more trouble with liquids but food depends a lot on the texture. I have had my esophagus stretched many times but no help. They are now telling me I may eventually have to have a feeding tube. I also have acid reflux up into my ears and sinus. I cannot swallow pills at all, must be liquid or crushed. I have been advised to see a speech therapist but none of my doctors seem to want to do that. I guess I have survived all these years, hopefully, I can go a few more. But I am interested in learning more about the surgeries and new treatments.

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