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Abdominal pain undiagnosed plus thrombocytopenia

Posted by @fatherof2 in Digestive Health, Aug 23, 2011

I'm stuck and I'm frustrated. I don't know what's causing any of my multiple symptoms and problems, and I hope someone can share some ideas. Some lower abdominal pain prompted me to see my doctor last October. The doctor ordered a CT scan, which was negative. He referred me to a gastrointestinal specialist who performed a colonoscopy because of my family history and an ultrasound. Both of them were negative. I soon afterward suffered my fifth urinary tract infection in 11 years. The urologist performed a cystoscopy, which was negative. I took amitriptyline, an antidepressant to treat what the gastro doc said was likely pain from irritable bowels, and ciprofloxacin, an antibiotic to wipe out any lingering UTI-related issues, for three months. I soon afterward developed a pain in my left upper abdomin, immediately below my rib cage. My physician did more bloodwork and found that my platelet level has steadily declined throughout my treatment and most recently dropped 19 percent in three months. I also have developed erectile dysfunction. My doctor ordered another ultrasound to check my spleen, which we feared was enlarged. It turned up nothing. So to summarize, I have had my fifth UTI in 11 years, upper and lower abdominal pain, erectile dysfunction, thrombocytopenia (low platelet count) and possibly irritable bowel syndrome all since October and I have no explanation for any of it. Anyone have any advice or ideas?


Posted by @e55, Oct 24, 2011

Did you go to mayoclinic?


Posted by @fatherof2, Oct 24, 2011

Unfortunately, no. That's not possible for me right now.


Posted by @glutenfreecuredmycrohns, Nov 2, 2011

Go gluten-free for a month and you should feel much gastro doctor will tell you this because they will lose too many patients.


Posted by @kwhit71, Sep 1, 2012

Have your dr check you for Spherocytosis (red blood cell disease). I was diagnosed with that after having a few of your symptoms. My spleen is enlarged but not enough to remove. I go to my Hematologist every 2-3 months to check my HCT. My dr did say my spleen would eventually be removed. I've had multiple Splenic Infarctions. It's worth a shot to have this looked at.


Posted by @fatherof2, Sep 2, 2012

kwhit 71, thanks for responding. Lucky for me, I have gotten an answer as to what had been causing my abdominal pain. I had three stomach ulcers and an abdominal hernia. I have been taking omeprazole (Prilosec) for about nine months and I've cut back on caffeine and alcohol. The ulcers have healed, and the hernia pain now is minimal. How are you doing? Have you felt any better during your treatment?


Posted by @kwhit71, Sep 2, 2012

Glad you got a diagnosis and are doing better. Not any better on my end. I see the hematologist again on the 19th. Hopefully then I will get some answers.

Posted by @triciatomlinson35gmailcom, Oct 16, 2012

Did anyone tell you to try more Probiotics to help get more good bacteria in your system? I've been experiencing IBS symptoms and I'm going to try that next. I'm actually afraid to go to the doctor because they will run all of those tests that you did and find nothing. Joining a community like this is awesome. I hope all is still well with you.

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