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Ryman
@ryman

Posts: 143
Joined: Dec 09, 2012

A Little Discouraged Tonight

Posted by @ryman, Mar 13, 2017

hello, I have a number of issues. I won’t go into all the details. The latest is that I have low oxygen level. The doctor ordered nighttime oxygen Wed but the staff hadn’t sent the order in till today. The last couple of months I have been sick in a different kind of way. I really can’t describe it. And it seems to take so long to learn anything and get things done. I guess I am just impatient because I feel so bad and can’t drive or do much of anything. Sorry just needed to whine a bit.

REPLY

Hi @ryman!! Welcome to the group!!
It is so frustrating when you can almost see and feel the hope of relief at your fingertips just to have to wait and wait. So many obstacles can stand in the way that it makes it harder.

No better advocate for yourself than YOU. Hang in there and stay on top of it. Praying relief finds you soon!!

Dawn

@dawn_giacabazi

Hi @ryman!! Welcome to the group!!
It is so frustrating when you can almost see and feel the hope of relief at your fingertips just to have to wait and wait. So many obstacles can stand in the way that it makes it harder.

No better advocate for yourself than YOU. Hang in there and stay on top of it. Praying relief finds you soon!!

Dawn

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Thank you

Have you use the oxygen at night before or Will this be your first time trying it?

I certainly will encourage you based on my previous experiences and my professional line of work to give the doctors office a friendly reminder tomorrow morning first thing. And follow up tomorrow afternoon if necessary. Trust me you will not be bothering them they want what’s best for you and sometimes orders get lost in the shuffle of paper work.

Dawn

@dawn_giacabazi

Have you use the oxygen at night before or Will this be your first time trying it?

I certainly will encourage you based on my previous experiences and my professional line of work to give the doctors office a friendly reminder tomorrow morning first thing. And follow up tomorrow afternoon if necessary. Trust me you will not be bothering them they want what’s best for you and sometimes orders get lost in the shuffle of paper work.

Dawn

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This will be my first time with home oxygen. I have had it in hospitals. Yes, I will keep reminding them. It is a very busy office with several doctors so I am sure things do get overlooked at times. Thank you.

Hi @ryman,

No need to apologize for talking about your frustrations! You are dealing with so many health challenges, and we are glad to see that you are continuing to advocate for your own health.

I recall, in one of your first messages, you had mentioned that difficulty with swallowing was bothering you; you may be interested in connecting with other members talking about similar symptoms, for example, here:
Achalasia: http://mayocl.in/2md3M8t
@mdawn @phyllisbator @geezer have discussed this problem as well, and I hope they return with some more information for you.

@ryman, the Connect community is here to listen, and support you, so keep talking and also keep us updated.

@kanaazpereira

Hi @ryman,

No need to apologize for talking about your frustrations! You are dealing with so many health challenges, and we are glad to see that you are continuing to advocate for your own health.

I recall, in one of your first messages, you had mentioned that difficulty with swallowing was bothering you; you may be interested in connecting with other members talking about similar symptoms, for example, here:
Achalasia: http://mayocl.in/2md3M8t
@mdawn @phyllisbator @geezer have discussed this problem as well, and I hope they return with some more information for you.

@ryman, the Connect community is here to listen, and support you, so keep talking and also keep us updated.

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Thank you. I will check out the Achalasia link.i know there are so many people, even here on this forum, who have it so much worse than I. But it is good to have a place to talk about my frustrations.

@kanaazpereira

Hi @ryman,

No need to apologize for talking about your frustrations! You are dealing with so many health challenges, and we are glad to see that you are continuing to advocate for your own health.

I recall, in one of your first messages, you had mentioned that difficulty with swallowing was bothering you; you may be interested in connecting with other members talking about similar symptoms, for example, here:
Achalasia: http://mayocl.in/2md3M8t
@mdawn @phyllisbator @geezer have discussed this problem as well, and I hope they return with some more information for you.

@ryman, the Connect community is here to listen, and support you, so keep talking and also keep us updated.

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@ryman I saw your message on needing a place to whine…..I immediately knew that is what I was needing !! A place to admit how worried I am about the next appt. how depressed I am at where my life has taken me and the overwhelming sadness ( my daughter died 3 yrs ago April 20 ) It is its own physical pain ( apart from all the pain I have 24/7 ) . I don’t discuss any of this with my family both my son and husband do not deal with emotions and illness well. To my friends ???they seem to have so much going on in there own lives doesn’t seem right to dump on them and bring them down just because I am feeling low. I am always the one everyone goes to for support and comfort…..how can I disappoint them? I struggle with sharing or appearing weak, I mean people are always saying how strong I am how inspirational I am. Most of the time I am positive, I know that I have been blessed cancer or not.
But tonight I do not feel strong Tonight I needed someone to lean on……Tonight I just needed to cry out loud and not keep all of it in.
I can only imagine the release I would feel to just cry….but I didn’t
Well…..when I said I needed a place to whine I wasn’t kidding was I
Thank you Ryman for giving me a place to express some of this

@kanaazpereira

Hi @ryman,

No need to apologize for talking about your frustrations! You are dealing with so many health challenges, and we are glad to see that you are continuing to advocate for your own health.

I recall, in one of your first messages, you had mentioned that difficulty with swallowing was bothering you; you may be interested in connecting with other members talking about similar symptoms, for example, here:
Achalasia: http://mayocl.in/2md3M8t
@mdawn @phyllisbator @geezer have discussed this problem as well, and I hope they return with some more information for you.

@ryman, the Connect community is here to listen, and support you, so keep talking and also keep us updated.

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I am so very sorry for the loss of your daughter. I think that must be the worst pain a person would have to endure. I know what you mean about not wanting to dump on family and friends. This is a very good place to pour it all out. People are always saying I am so strong but I am not. I am trying more and more to lean on God and trust Him. Still, sometimes we do just need to talk, to let it all hang out. So I am glad someone created this board. Hang in there. Sounds like you do that pretty well.

@ryman Thank you for your kind and helpful post. You have discovered a way to deal with your pain and that is a great gift. You have also discovered a way to share this plan with others! Teresa

@kanaazpereira

Hi @ryman,

No need to apologize for talking about your frustrations! You are dealing with so many health challenges, and we are glad to see that you are continuing to advocate for your own health.

I recall, in one of your first messages, you had mentioned that difficulty with swallowing was bothering you; you may be interested in connecting with other members talking about similar symptoms, for example, here:
Achalasia: http://mayocl.in/2md3M8t
@mdawn @phyllisbator @geezer have discussed this problem as well, and I hope they return with some more information for you.

@ryman, the Connect community is here to listen, and support you, so keep talking and also keep us updated.

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@allisonsnow Thanks for sharing with us, we all need a shoulder to cry on at times. Mayo Connect provides lots of shoulders and listening ears. Keep sharing. Teresa

@dawn_giacabazi

Have you use the oxygen at night before or Will this be your first time trying it?

I certainly will encourage you based on my previous experiences and my professional line of work to give the doctors office a friendly reminder tomorrow morning first thing. And follow up tomorrow afternoon if necessary. Trust me you will not be bothering them they want what’s best for you and sometimes orders get lost in the shuffle of paper work.

Dawn

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@ryman Did you get all hooked up with your oxygen ? Are you using a concentrator? I am on oxygen 24/7 so LONG tubing is my best friend !!!: 🙂 My husband is just glad it reaches to the washing machine hahaha He is great and does most of the laundry anyway, just never my clothes. But seriously it can be an adjustment. I have been thinking of you and hoping the hook up went well and you are waking up with higher levels. Good Luck !

@dawn_giacabazi

Have you use the oxygen at night before or Will this be your first time trying it?

I certainly will encourage you based on my previous experiences and my professional line of work to give the doctors office a friendly reminder tomorrow morning first thing. And follow up tomorrow afternoon if necessary. Trust me you will not be bothering them they want what’s best for you and sometimes orders get lost in the shuffle of paper work.

Dawn

Jump to this post

@allisonsnow I love the phrase, “so LONG tubing is my best friend” it reflects that you have come to accept and appreciate where you are right now and you are thankful for the help that you get. Best wishes for a good day today. Teresa

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