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Interstitial Lung Disease and Lung Transplant: What Patients Need to Know

Wed. Sep 30, 2015 at 12:00 pm CST

Mayo Clinic hosted an interactive webinar on interstitial lung disease on Sept. 30, 2015. Cassie Kennedy, M.D., Transplant Pulmonologist, and Teng Moua, M.D., Interstitial Lung Disease Clinic Director, discussed interstitial lung disease symptoms, diagnosis, and treatment options, including lung transplantation. A live question and answer session followed the presentation. You can watch the recording of the webinar now.

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Tinapass

Tinapass wrote:

***URGENT*** My 55 year cousin is battling her second bout with BOOP. She was put on hospice about a week ago. Is this disease in the same category as Interstitial Lung Disease. Are patients with BOOP good candidate for heart/lung [...] View full text  

Posted Sun, Oct 18 at 9:02pm CST

LaurenSpiceland

Lauren Spiceland replied:

Hi Tina, I'm so sorry to hear about your cousin. You may find this link helpful: http://www.mayoclinic.org/cryptogenic-organizing-pneumonia-cop/expert-answers/faq-20057840. You can contact our Transplant Center to ask about transplantation: http://www.mayoclinic.org/departments-centers/transplant-center/contact-us. You can visit our appointment page to learn about scheduling an appointment: http://www.mayoclinic.org/appointments. Hope this helps!

Posted Mon, Oct 19 at 11:46am CST

baz10

baz10 wrote:

Can the beta blocker Corgard (nadalol) cause lung scarring? Diagnosed with chronic bronchitis (copd) and have taken Corgard 30 years for LGL heart syndrome. Can't take many of the bronchodilators due to the syndrome and meds.

Posted Wed, Sep 30 at 3:12pm CST

LaurenSpiceland

Lauren Spiceland replied:

From Dr. Moua: I have not had experience with nadolol or other beta blockers causing a common or recognized form of lung injury or chronic lung scarring. A search of the literature suggests a phenomenon of ‘lung allergy’ or hypersensitivity pneumonitis, though it’s unknown as to its long term scarring or fibrosis. There are many other causes of lung scarring, including some associated with COPD or smoking, as well as occupational or environmental exposures. So, these should be reviewed carefully first before concluding that nadolol is contributory to lung scarring as it may be helpful or needed for your heart condition.

Posted Thu, Oct 1 at 3:20pm CST

russcon23

russc wrote:

Thank you, very informative webinar.

Posted Wed, Sep 30 at 1:10pm CST

jambo303

Jambo303 wrote:

Could you please repeat/spell the webpage where you can find Medications which are a possible cause for diseases.

Posted Wed, Sep 30 at 1:04pm CST

LaurenSpiceland

Lauren Spiceland replied:

Sure. The URL is http://www.pneumotox.com/.

Posted Thu, Oct 1 at 3:21pm CST

The webinar has concluded. In the following week Dr. Kennedy and Dr. Moua will work on answering questions they didn't get to during the webinar.

Posted Wed, Sep 30 at 1:01pm CST

stjudemom

Terri wrote:

Thank you. The bronch pathology showed lymphocytes? very high common in hypersensitivity with lymphocytes in sarcoidosis extremely minimal. Thank you for doing this webinar

Posted Wed, Sep 30 at 12:58pm CST

Why is each post repeating up to 4 times?

Posted Wed, Sep 30 at 12:56pm CST

LaurenSpiceland

Lauren Spiceland replied:

We're not seeing that, Barbara. Sorry for any confusion that is causing!

Posted Wed, Sep 30 at 1:00pm CST

bys999

Brenda S. wrote:

female patient age 71, advanced idl, good health otherwise, what is your opinion of transplant survival?

Posted Wed, Sep 30 at 12:50pm CST

LaurenSpiceland

Lauren Spiceland replied:

From Dr. Kennedy: There is some published evidence that the average survival of a patient that is 71 would be less than that of patients under 40 following lung transplant. However, if the patient is in otherwise good health transplant may still be considered a good option for those with an otherwise low life expectancy or poor quality of life.

Posted Thu, Oct 1 at 3:21pm CST

012984

Joni wrote:

Thanks, my diagnosis was made by open lung biopsy sent to the mayo clinic in Arizona. I am also on 2000mg of cellcept for the NSIP with 30% fibrosis.

Posted Wed, Sep 30 at 12:49pm CST

russcon23

russc wrote:

What I'd the best way to wean off of prednisone?

Posted Wed, Sep 30 at 12:48pm CST

Anonymous wrote:

What immuno. supp. drugs are prescribed after a transplant?

Posted Wed, Sep 30 at 12:47pm CST

LaurenSpiceland

Lauren Spiceland replied:

From Dr. Kennedy: Medications differ by program, but the standard regimen usually includes one of each of three classes of medications:
1) Calcineurin inhibitors (cyclosporine or tacrolimus) or mTor inhibitor (sirolimus)
2) Steroid (Prednisone)
3) Antimetabolite (azathioprine or mycophenolate mofetil)

Posted Thu, Oct 1 at 3:22pm CST

russcon23

russc wrote:

What is success rate for cell cept as a lessening of progression agent?

Posted Wed, Sep 30 at 12:44pm CST

carolknott

carolknott wrote:

Will the slides used be posted?

Posted Wed, Sep 30 at 12:34pm CST

LaurenSpiceland

Lauren Spiceland replied:

Yes, we'll have a recording of the webinar available on this page.

Posted Wed, Sep 30 at 12:35pm CST

kerchap

Kerry Chapman wrote:

If you are transplanted, and you have reached the 5-6 year mark, what are the chances of another transplant?

Posted Wed, Sep 30 at 12:31pm CST

stjudemom

Terri wrote:

Initially CT looked like sarcoidosis. Bronch showed pathology of hypersensitivity pneumonitis. Unaware of any exposure. Left environment and symptoms progressed rapidly. Started prednisone and weaning off now. Is it possible for this to be hypersensitivity even though I left environment [...] View full text  

Posted Wed, Sep 30 at 12:26pm CST

karenbabb

Karen Babb wrote:

Is GERD considered a a diagnostic cause of Lung Fibrosis

Posted Wed, Sep 30 at 12:18pm CST

Anonymous wrote:

I took nitrofuranton (macrobid) many different times in my lifetime to treat a UTI. THe last two times I took it, I had a reaction and had hives. The last time I took it was in 2005. Could that be [...] View full text  

Posted Wed, Sep 30 at 12:13pm CST

karenbabb

Karen Babb wrote:

It here is no volume. Is there a dial in for audio?

Posted Wed, Sep 30 at 12:13pm CST

LaurenSpiceland

Lauren Spiceland replied:

Karen, the volume is working for us. Maybe try your computer settings?

Posted Wed, Sep 30 at 12:14pm CST

Are you aware of any lung transplant centers in the U.S. that will asses someone older than 75?

Posted Wed, Sep 30 at 12:12pm CST

Post your questions for Dr. Moua and Dr. Kennedy here. They will answer questions after their presentation.

Posted Wed, Sep 30 at 12:09pm CST