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lr34me
@lr34me

Posts: 1
Joined: Oct 18, 2012

11 MONTH OLD BOY-PERSISTENT CHYLE LEAK AFTER GLENN PROCEDURE FOR HYPOPLASTIC LEFT HEART SYNDROME

Posted by @lr34me, Oct 19, 2012

I AM LOOKING FOR SOME HELP FOR MY INFANT NEPHEW MAXIMUS WHO IS AT CHILDRENS HOSPITAL OF PHILADELPHIA. POST GLENN PROCEDURE HE HAS HAD A CHYLE LEAK THAT DOCTORS ARE UNABLE TO CONTROL. SEVERAL PROCEDURES HAVE FAILED (EMBOLIZATION WITH GLUE X3, SURGERY ON DIAPHRAGM TO ALLOW FLUID TO PASS TO ABDOMEN, A FEW DAYS OF OCTREOTIDE) AND NOW WE ARE TOLD THERE IS NOTHING LEFT TO DO. IS THERE ANYONE AT MAYO CLINIC THAT MAY SPECIALIZE IN THIS AREA THAT COULD CONSULT WITH OUR FAMILY AND/OR THE DOCTORS AT CHOP? WE ARE DESPERATE FOR HELP. MAXIMUS HAS FOUGHT SO HARD THROUGH ALL OF THIS AND WE CAN’T JUST GIVE UP. THANK YOU FOR ANY HELP THAT YOU CAN GIVE US. GOD BLESS.

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