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marged avatar

Extension to 0 after TKR

Joint Replacements | Last Active: Oct 24 10:59am | Replies (14)

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Profile picture for Justin McClanahan, Moderator @JustinMcClanahan

Hello @marged,

I have a similar experience to share, but under different circumstances. I was diagnosed with hemophilia as a child (rare genetic bleeding disorder). Before treatments improved as I got a bit older, I suffered a lot of internal bleeding in my right knee as a child and ended up with end-stage arthritis by the age of 12 or so. I had a total knee replacement when I was 19 (after growth was done).

By the time I had my knee replaced, my knee was so arthritic that I was only at 14 degrees or so of flexion. I had been at that level of flexion for close to 7-8 years at that point. When I woke up from my replacement and my knee was in an immobilizer stretched completely straight, it was excruciating. Not because of the knee so much, but all of the tendons, muscles and ligaments that had not been stretched that way for almost a decade. It took a LONG time for my recovery, but I did eventually get to 0 degree flexion.

At 19, I did not take my recovery as seriously as I should and prolonged my own recovery. All of this is to say that 0 degree flexion is possible, but it takes time and discipline. Follow your PT and stretching and give your surrounding tissues time to stretch as they are fighting years of atrophy. Your mobility and activity is impressive!

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Replies to "Hello @marged, I have a similar experience to share, but under different circumstances. I was diagnosed..."

@JustinMcClanahan Hi Justin, I am also a haemophiliac with the same situation that you had to face. After reading through hundreds of comments and remarks about people talking about their tkr experience, I could barely relate to any of them until i came across this comment of yours. I am 23 years old now and have had a contractured knee for 10 years and just about to go into a total knee replacement in a few days. I would reallyyy love to get in touch with you someway and ask a few questions, Looking forward to hearing from you.