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Interstitial Cystitis - I would like to connect with others

Kidney & Bladder | Last Active: Oct 30, 2021 | Replies (66)
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@kanaazpereira

Hello @suzettemh,

Welcome to Connect; we're glad you joined us in this discussion. @susierq111 @tbeckys @cbs61752 @kas1792 @operationqueen @rdrdhap @suzette @barb54 @8dzaweek @lexi @jeananderson2014 @mgnunez75 @Weedy @praymond234 @mogulers @kerrilynn1 @jmgm @charlenem, have posted about interstitial cystitis (IC) in previous discussions, and I hope that they will return to share their experiences.

I'd also encourage you to read this information on interstitial cystitis from Mayo Clinic: http://mayocl.in/1v8Vak4.

@suzettemh, have you altered your diet or thought about ways you could change it? Do you have any specific questions about IC, or maybe insights to share with Connect members?

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Replies to "Hello @suzettemh, Welcome to Connect; we're glad you joined us in this discussion. @susierq111 @tbeckys @cbs61752..."
suzettemh | @suzettemh | May 3, 2017

I limit my beverage of choice to water. No carbonization, no alcohol, no artifical sweetners. I suffer with a burning bladder and eat mildly with lots of water when in a flare.

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susierq111 | @susierq111 | May 4, 2017

I drink milk, water and a very occasional diet root beer with my IC. Did your dr. Tell you about the pill Prelief. Which can be purchased at Walmart and occasionally I take them so I can eat something not on the IC diet, but that is rare I do that. I do best following the IC diet.

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marytodd | @marytodd | Dec 13, 2018

My IC is severe, tried everything only Oxycodone helps. Just found out my pain Dr of 7yrs is retiring and need recommendations in New Jersey thanks!

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