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121861 (@121861)

Recurrent anaplastic oligoastrocytoma or necrosis?

Brain Tumor | Last Active: Sep 3, 2017 | Replies (16)

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@audrapopp

I have had 3 grand mal seizures and continued simple focal or partial seizures too. I will be on seizure meds for life. Seizure meds and seizures can be quite tiring in themselves. But, they also say it takes a good year to fully recover after surgery…than you add treatment on top of it. It all takes time. Find things she likes to do and can be passionate about.
My tumor started as a grade 2 but progressed to grade 3. I was able to work full time thru the Temodar treatment and part time with CCNU treatment.
I understand you are scared but there are so many amazing treatment breakthroughs coming out now and in the near future that you really should remain hopeful. Is she being treated at a major Cancer center?? Never be afraid to get a second or third opinion. I am treated at Mayo Clinic in MN.

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Replies to "I have had 3 grand mal seizures and continued simple focal or partial seizures too. I..."

My daughter is being treated in st.louis at siteman cancer center . We went to Houston for an opinion and they wanted to operate but her surgeon doesn’t want her having anymore surgeries . I’ve been looking into mayo in MN , she has a MRI end of April , I thinking we will try to go after that . Do you like mayo ?

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