Adrenal cancer metastasized

Posted by xtremeleigh @xtremeleigh, May 22, 2023

I've just been diagnosed with adrenal cancer metastasized to kidney with spots in liver and lungs. I'm wanting to speak with someone else who is experiencing this .I'm 59 and my cancer was accidentally found. In the last 4 weeks I first developed edema and high blood pressure. I'm in medical ward now trying to get blood pressure down 195/average. Next symptom last week was not being able to hold urine. When I've got to go I've got to go straight away. Discomfort in my back and under ribs has started and drastic weight loss with nausea. Fatigue has been with me even before diagnosis. The last scan Wednesday will be if it's in the main blood vessel

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@xtremeleigh, you sound like you are dealing with a lot. I'm sorry to hear about your diagnosis of metastatic adrenal cancer and all the complications you're experiencing.

I'm tagging fellow adrenal cancer members like @freitag @bailey02 @alanbruce @mentallyill @liz65liz65 @timothyatkins @1kjewels @tenn3 @tomelledge @annadamscleary and others. You can read more about their journies in this discussion:
– Adrenal Cancer: Anyone else have this? https://connect.mayoclinic.org/discussion/adrenal-cancer/

Leigh, what treatment is being suggested for you? How are doing?

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I have had kidney, pancreatic and liver cancer have survived for several years in good health, but now it has been discovered in my adrenal gland and small area in stomach wall. My doctor is favoring drug therapy. Keytruda and Inlyta has anyone gone through this type of treatment.?

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@rmlieberenz

I have had kidney, pancreatic and liver cancer have survived for several years in good health, but now it has been discovered in my adrenal gland and small area in stomach wall. My doctor is favoring drug therapy. Keytruda and Inlyta has anyone gone through this type of treatment.?

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My wife was in this same boat this time last year.
She had cancer in her throat 24 years before , she went through massive radiation treatments that left behind many uncomfortable problems. When we met she told me she wasn’t sure if she would go through the treatments again. Well after 24 years she it did come back. Because of me, she did do chemo and radiation. A few weeks after they checked and they got rid of what they wanted only to find new cancers. She was given the option for keytruda .
She had been in some type of pain for half her life. The news was devastating. She studied the pros and cons of keyrtuda and talked with people on it.
She talked with me and her mom and decided against taking it. We understood.
It depends on where your at mentally, if you have people your living for and you can handle the complications then keep up the fight. My wife was 52 she never had children, she traveled the world , married, and experienced everything life could offer. But she didn’t want to continue with the daily pain.
What ever you do, do it for yourself and your

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Thank you for telling me about your wife ands her journey. I have put off my decision until Aug. after other tests I will see how I feel about it.

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