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Anyone have cancer with unknown primary?

Cancer | Last Active: 2 days ago | Replies (94)
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@ford68travel

He was having some back pain. He was feeling weak and tired. They did a simple x-ray, and saw several spots. The next day he had a cat scan. Then a bone scan and on April 17th the Pet scan. Wondering if Mayo can test the biopsy further, to see if it reveals any info on the primary.

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Replies to "He was having some back pain. He was feeling weak and tired. They did a simple..."
Teresa, Volunteer Mentor | @hopeful33250 | May 29, 2023

Hello again @ford68travel

I appreciate the added information about your husband's health issues. You ask an interesting question about Mayo testing the biopsy. The best way to find out if that is possible would be to contact Mayo Clinic through their appointment department. Here is a link that you can use to see about an appointment, http://mayocl.in/1mtmR63.

I would also encourage you to post in the NETs discussion group on Connect. One discussion group that might be of interest to you would be the following: https://connect.mayoclinic.org/discussion/net-in-the-spine.

If you look at all the discussions in the NETs group, you will undoubtedly find others that will inform you of treatment options that others have used. Here is a link to all of the discussions, https://connect.mayoclinic.org/group/neuroendocrine-tumors-nets/

Finding the primary is a problem for some people who have NETs. As you probably already know, NETs can produce very small lesions that are not visible on many of the traditional scans. One of the most effective scans to locate NETs is the 68 Gallium Dotatate PET scan. Here is information about this specific scan for NETs:

https://connect.mayoclinic.org/discussion/68ga-dotatate-positron-emission-tomography-pet-now-at-mayo-clinic/

Has your husband had this scan?

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