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Njh visit
Hello
I am currently at njh. Great place, glad i came. Have had all kinds of test. Wondering if any of you had a positive sweat test and high anti nuclear score. Have paid for the gene testing for cystic fibrosis. It takes a few weeks for the results. I was shocked to have high levels. Doctor says all the autoimmune test are not back yet but so far they have been normal. Don’t understand why my number is so high. I leave tomorrow after some swallowing test. I had neck cancer so for me this is appropriate.
Any thoughts would be helpful.
Miriam
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I totally agree with you and I left a message with the Ambassador I originally had but she was out of town and I have not heard back from her either. I am supposed to start inhaled Amakacin and NJH sent it to my regular pharmacy and it has to go to a Specialty pharmacy so they called NJH and spoke to a nurse over a week ago and I still don't have it. Did the nurse or doctor from NJH call you with Genetic test results saying you were indeed positive?
Does NJH have a patient portal for communication?
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1 ReactionThey did not. I read it on the portal. I tried communicating on the portal because that's what the Ambassador told me to do. My ambassador also left and I have a new one. I called her every day for a week. I finally called the scheduling number AGAIN and left a curt message. She called me back that day.
They do but so far, no luck.
I may have to get that number for scheduling from you because I am supposed to go back in six months. I am hoping someone will reach out to me today.
I have both and during my recent testing at NJH, I tested negative on the sweat tests.
NJH has now implemented My Chart as their patient portal. If you had an account on the old patient portal, you must sign up for a new account in the new system. I was at NJH from May 10 thru May 17 and the employees were just starting to use My Chart - not without their struggles I might add. It's always rough going from one system to another. Once they get used to it I think they will find that it is a pretty great software for both NJH and patients!
Thank you!