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I am now diagnosed with PNES. No more tests, no more bloodwork, she (neurologist) didnt even look at the EEG results. She read previous ER visit and dr notes/ information. It’s an answer. I’m trying to understand it. Absorb as much information as I can about it so I can get past this. I want my life back. I want to work, come home, take care of my kids. I want to cook for and do for them. I want to socialize with my family and friends again. I have chronic back and neck pain (degenerative disc disease) sciatica, Fibromyalgia. That didn’t stop me from enjoying my life, having fun and living. I know pain and I get past it. So this is only temporary. I am going to make an appointment with my physical medicine Dr to recheck the discs in my neck. It is painful and I get bad headaches. I have an appointment with my primary Dr Thursday as a follow up from ER and hospital stay. I also have a psychiatrist appointment next week. I’m open to doing everything I can to get better and enjoy life again. Thank you for your responses @sbruce. Colleen_young

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Replies to "I am now diagnosed with PNES. No more tests, no more bloodwork, she (neurologist) didnt even..."

So now I have a diagnosis of conversion disorder with psuedoseizures. However I can’t agree with it. I was taking Nortriptyline for my Fibromyalgia. I believe this medicine’s side effects are what caused my seizures and other symptoms. After having severe headaches (like a bad hangover feeling) every morning for about 8 days everything stopped. I didn’t take it anymore. None of the doctors checked for possible side effects of this medicine… I did. Since the doctors had no answers ofcouse it was assumed it was in my head.. A mental block. I complied and went to see a psychiatrist. The psychiatrist changed my medicine to cymbalta and said not to take the other medicine because of something elevated on my EKG. I don’t have a traumatic event or deep rooted sexual abuse in my past. I’m not depressed or in need of attention. I don’t suffer from depression. I have Fibromyalgia. I have degenerative disc disease, carpal tunnel, chronic neck & back pain …yes. I live with this and still manage to work, be active, exercise. do yoga, gp for acupuncture, socialize with great friends & family, date and function in the most positive way I can. The only thing I got out of this is to be your biggest advocate! Educate yourself, do your own research and never give up. For me, I’m looking into more alternative medicine, acupuncture, foods, exercise, meditation, yoga… I’m not taking any meds right now. Maybe that will change but for now this is where I’m at. Thank you for hearing me.

…your post’ was an enlightening thing, one that I needed; I too spent a bit of time at the Mayo and experience similar things; anyways, Thanks!
Kevin Kelley

so would you recommend going to mayo

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