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SFpN UNDER age of 60?

Neuropathy | Last Active: Jun 24, 2023 | Replies (15)

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@milesdaviskindofblue

Hello everyone Nicom 26 I was fairly young when mine started I’m 52 I’ve been battling the numbness , tingling, water trickling feeling down the legs , back , arms, but I also have spinal Arachnoiditis pain never shuts off …was later diagnosed with I know now needles anywhere around fluid space is a no ‘’no .. for any procedures I’m wheelchair driven away from the house and walker driven in home I’ve been a drummer all my life and since I can’t feel the pedals anymore I recently picked up the guitar to keep my mind and body and soul in tune . By all means folks don’t give up push the limits I know the pain never shuts off … but neither does the creative mind and it will make you feel better those happy endorphins will kick in your body might feel like crap but your soul with thank you for it 🙏🏻 Picking up the guitar has been fun playing learning the riffs of bands alike that I grew up Keep pushing everyone and god bless

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Replies to "Hello everyone Nicom 26 I was fairly young when mine started I’m 52 I’ve been battling..."

Hello to you Haybusa! Well, what a demeanor, and a fierceness, and a wonderful gift of a personality I feel from your words and your encouragement. Thakn you for being you and thank you for taking the time to write all of us and give us that push - to keep on keeping on! Like you, I've got some spinal stuff, and I also suffered brain trauma, spinal and skeletal damage due to DMV accident (I'm not the at-fault party; was stopped at a red light actually), and I was just telling my patient navigator Chester how much I yearn to play the drums to get the ANGER out! But you know, you reminded me of the fact that I have a keyboard I can learn, and I used to love to play bass guitar -and once I have some money saved up I'll be getting myself another lefty pony bass... and I can always lay it on my lap like Elizabeth Cotten did her guitar... she played and plucked as if her guitar was almost a harp, you know? My partner is a drummer and he found a few apps on his phone where there's a drum kit and you can use your hands to hit the foot pedals, and my Patient Navigator (God Bless Him! and YOU!) told me that there are drum kits you can set up right at your bedside- but check you out- you're on guitar! That's really cool... Until I can get back to practicing ballet and once I'm not so badly bed-bound, I plan on relocating back to my native Sunshine state to be closer to friends and family, and to let the Atlantic sea and salty air and sunshine give me the best possible opportunity to live this life - I figure if I'm going to be laying this much, I want to do it at home, and home for me has always been the Atlantic Sea 🙂

Thank you so much, and should you be interested in forming a collective/ jam sesh/ band/creativity crew for folks like us to come together online and showcase our works and collaborate and such, please let me know.

I really think that having a space dedicated to making could help folks like us find new ways to be creative and have community with other creatives, yeah?

I thank you sincerely for your encouragement and your contagious positivity. I'm so glad you took the time to right. God Bless to All is right - right back atcha! Would love to hear more about how things are going on guitar, and i like your @milesdaviskindofblues handle.

Ahh - now I miss the days of calling New Orleans home - but hey, the music transports us anywhere we want to go.

All the best,
sincerely,
and with so much admiration,

nicole marie