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SFpN UNDER age of 60?

Neuropathy | Last Active: Jun 24, 2023 | Replies (15)

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@aime

Hello, I’m 54 and have been diagnosed with SFN and some mild large fiber neuropathy. That’s about all they told me. I also tested positive for VGKC antibodies and also a weak, speckled pattern ANA. Not much is being offered for treatment except Pregabalin. I have stiff muscles, cramping pain , brain fog, burning and tingling and extreme fatigue.

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Replies to "Hello, I’m 54 and have been diagnosed with SFN and some mild large fiber neuropathy. That’s..."

Hi there @aime. You know I didn't find Pregabalin to be very helpful because for me, the side effects outweigh the help, but it does work better for me than Gabapentin ... Gabapentin made my brain fog so much worse, same with the fatigue. I hope you get more information and I'm so glad you messaged.

My neurologist i see for neuromuscular speciality has been the most informative, and he had one of his staff members send me some articles about SFpN and such when I was diagnosed. I hope that you get a follow up or are referred to someone who can further inform you ... the symptoms you have are things I can identify with, but it sounds like you have been diagnosed with things that need more care, specialization, explanation, and I hope you get the answers you need!

Sending gentle hugs your way. Stay strong, even positive, when you can (easier said than done!) - and thanks so much for your message @aime (love your name, btw, parles-tu francais? Love. great name).

All the Best to you,

Nicole Marie