What are the take always from recently getting a bronchoscopy done to

Posted by ainek @ainekrech, May 1, 2023

I recently had a bronchoscopy done to see what antibiotics should be taken or not taken. Findings of abnormal cells and some atypical cells, but negative for most stains. Negative for malignancy.
Still having CT done every three months for growing lymph nodules. Watching a couple of one connecting the liver to my stomach.
Are others having multiple issues too?

I have problems with kidneys too.

Interested in more discussions like this? Go to the MAC & Bronchiectasis Support Group.

@ainekrech Can you tell us what the doctor who ordered the bronchoscopy told you about the results? It sounds like there is no evidence of a current infection, so no antibiotics would be helpful or appropriate.

Do you also have bronchiectasis, a cough or fever or other symptoms?
Sue

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Hi,
I haven’t seen my doctor yet, just results from my portal. I was diagnosed with Bronchiectasis back in 2014 with Asthma. I also had sepsis then with blocked kidney stones. I taught school and was sick all the time.
I was put on a three antibiotic rotation with one week off. I was always sick on the fourth week…continued on for several years then retired after being online teaching with Covid. I got off the antibiotics , but continued to get sick. I continue to wear a mask.
I year ago they found multiple nodules growing slowly and continued to monitor with CT scans. Currently have pneumonia again. Sinus issues are a problem too with 2 sinus surgeries.
I guess I’m wondering where does this lead to and how long can I be on antibiotics and getting scans?
I saw a sputum test that stated that a test was done that was negative for malignancy.??? I have super doctors!

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@ainekrech

Hi,
I haven’t seen my doctor yet, just results from my portal. I was diagnosed with Bronchiectasis back in 2014 with Asthma. I also had sepsis then with blocked kidney stones. I taught school and was sick all the time.
I was put on a three antibiotic rotation with one week off. I was always sick on the fourth week…continued on for several years then retired after being online teaching with Covid. I got off the antibiotics , but continued to get sick. I continue to wear a mask.
I year ago they found multiple nodules growing slowly and continued to monitor with CT scans. Currently have pneumonia again. Sinus issues are a problem too with 2 sinus surgeries.
I guess I’m wondering where does this lead to and how long can I be on antibiotics and getting scans?
I saw a sputum test that stated that a test was done that was negative for malignancy.??? I have super doctors!

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Well, Mayo Connect is a support group of fellow patients, not medical professionals. I think you need to discuss the findings with your doctors.

Since they did not find a specific infection, they may have sent the mucus for culturing, which could show slower growing bacteria. Again, a question for your care team.
Are you still on antibiotics? If there is not bacteria growing, this is unusual.
Sue

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@sueinmn

Well, Mayo Connect is a support group of fellow patients, not medical professionals. I think you need to discuss the findings with your doctors.

Since they did not find a specific infection, they may have sent the mucus for culturing, which could show slower growing bacteria. Again, a question for your care team.
Are you still on antibiotics? If there is not bacteria growing, this is unusual.
Sue

Jump to this post

Thank you!
Will update after next appointment.

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@ainekrech

Hi,
I haven’t seen my doctor yet, just results from my portal. I was diagnosed with Bronchiectasis back in 2014 with Asthma. I also had sepsis then with blocked kidney stones. I taught school and was sick all the time.
I was put on a three antibiotic rotation with one week off. I was always sick on the fourth week…continued on for several years then retired after being online teaching with Covid. I got off the antibiotics , but continued to get sick. I continue to wear a mask.
I year ago they found multiple nodules growing slowly and continued to monitor with CT scans. Currently have pneumonia again. Sinus issues are a problem too with 2 sinus surgeries.
I guess I’m wondering where does this lead to and how long can I be on antibiotics and getting scans?
I saw a sputum test that stated that a test was done that was negative for malignancy.??? I have super doctors!

Jump to this post

It sounds like MAC. Especially with taking the antibiotics and slow growing nodules... God that they wouldn't let you know that however though...
Please keep us updated and ask your doctor directly what they are treating you for.
Thanks and good luck

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I'm in my 5th year of what was MAC, now a serious fungal infection in the lung and now onto atrial flutter.
Antibiotics, CT scans, nodules, echos, PETs, elevated liver and kidney numbers seem to never end.
But hey, I played golf on Monday for the first time this year.

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@rstel7272

I'm in my 5th year of what was MAC, now a serious fungal infection in the lung and now onto atrial flutter.
Antibiotics, CT scans, nodules, echos, PETs, elevated liver and kidney numbers seem to never end.
But hey, I played golf on Monday for the first time this year.

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May I know what is atrial flutter, and its symptoms. I feel my heart is not pumping correctly although the cardiologist said everything is fine except I am having too much anxiety.

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Hi Rick
Very sorry to hear what you are dealing with right now. I hope you get some better news very soon. If you would like to share, what fungal infection is affecting you and what is prescribed for that? I have Bronchiectasis and have had a fungal infection since 2014 ( trichosporon mycotoxinivorans) and am looking to learn more from others who have gone through this. I was on various triazole meds for 6 years without clearance but achieved improved symptoms . In Aug 2021 then diagnosed with M. Chimera. Thanks if you want to share any additional info.

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I received a phone call from my pulmonary doctor with some results from the bronchoscopy. I have pneumonia and haemophus influenza. Other sputum cultures are still growing with another appointment to discuss results on the 17th of May. The doctor has put me on Levaquin for 14 days. In July I will have a CT to monitor the lung nodules and and a paraesophageal and solitary gastrohepatic lymph node. Keep monitoring, I quess...

Thank you for the information on this site. It is always so helpful.

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@rstel7272

I'm in my 5th year of what was MAC, now a serious fungal infection in the lung and now onto atrial flutter.
Antibiotics, CT scans, nodules, echos, PETs, elevated liver and kidney numbers seem to never end.
But hey, I played golf on Monday for the first time this year.

Jump to this post

You go Rick!

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