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Jeannie1 (@jeannie2)

My husband was dx with glioblastoma

Caregivers | Last Active: Oct 2, 2016 | Replies (24)

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@adri

Hi everyone! My dad was dx with glioblastoma stage 4. I’m 27. He is 58 years old, never been sick before. He had surgery on March 15th, 2016. The tumor was completely removed, thank God. We had his MRIs on April 17th and the drs said it was a perfect surgery. The next one will be on September, 2016, we still don’t know the day. He completed his radiations and Temadar on June 3th, 2016. And now he is staring again with Temadar 100mg 5 days every 28 days, on July 1st, 2016. Our lifes have completely changed since we found out about this. At the beginning, we didn’t really now what it was about but now we know and all I can say is that these have been, by far, the worst months of my life. He is still full of life, this is so unfair… He is fine now, I mean, scared but no more headaches, his tumor was on the right front part of the brain wich kind of helped because he speaks, walks… I mean, everything normal. I can’t even describe my sadness and anguish! But when I look at him, I feel happy, so… Lets see what happens! does anyone would like to share a positive testimony about this tumor?

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Replies to "Hi everyone! My dad was dx with glioblastoma stage 4. I'm 27. He is 58 years..."

Hi Adri,

Welcome to our group here at Connect. I echo Colleen in expressing my condolences that this terrible thing has happened to your family. The one thing I can offer is that this is a wonderful time in cancer treatments. There are so many new developments in all kinds of cancer, but specifically with respect to glioblastoma. They are coming up with new drugs, and immunotherapy, and there are many new clinical trials all the time.

My best advice is to make sure that your dad is being treated by an expert team, who is involved with research and who follows all the latest developments. That way you can be sure that your dad will get the best treatments possible and will hopefully be here for you for many years to come.

Wishing you and your family all the best.

Thank you for your words! Eventhough I don’t know you, I really appreciate it! Thank God, he is actually being treated by excellent doctors. We live in Mexico City and we are very pleased with how things have come so far. I look at him everyday and it’s like nothing really happened, you know? He is doing so good! There is actually this doctor who is a neuro oncologyst and he is good, he is really involved with research! Like I said before, thank you so very much for your kind words!

How wonderful that you have good doctors and more importantly that you can be hopeful in your situation.  Blessings!Teresa