Esophageal Radiation Burn after breast cancer radiation

Posted by Miriam, Volunteer Mentor @mir123, Apr 27, 2023

A question--I have finished radiation treatment #6 out of a course of 16. Yesterday the radiation oncologist warned me that the radiation might burn my esophagus because of the position of the cancerous lymph node. Today the helpful tech drew the field of area to avoid and repositioned my chin. With these changes she said I possibly "might not burn." However, I don't think I can handle the burn. I have many digestive issues, and trouble eating as is. My prognosis is poor--this radiation is most likely not curative. Does anyone have my experience with this kind of burn? IfI get symptoms I will immediately quit the radiation. My question--should I gamble and continue? AAdvice very welcome.

Interested in more discussions like this? Go to the Breast Cancer Support Group.

@mir123 -- When I had the radiation at a cancer center, I was told their state-of-the-art equipment was highly specific in hitting only the target area. It didn't go too wide or deep so it wouldn't affect my esophagus or lungs and it didn't. My radiation didn't even make my skin burn (just pink) until somewhere after 20 treatments. My question would be how old is that equipment? Is there equipment available somewhere else that can deliver more targeted therapy?

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I am sorry you have this (legitimate) concern. Where is the spot being radiated?

Best wishes to you, Cindy

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Hi, my dad just completed 6weeks of chemo and radiation (daily for 35 treatments) for an early stage 2 esophageal tumor. The last 2 weeks of treatments really got to him as his esophagus swelled pretty much to the point of closure so they inserted a stent and he also has the internal irritation causing the burn. Now, just shy of 2 weeks after the last treatment, he’s still experiencing the burning when eating or drinking and has lost a lot of weight. The doctor prescribed a liquid medication that coats everything so it makes eating/drinking somewhat bearable, but I’m hopeful that at the close of week 3 he starts feeling better. I live out of state and he’s alone and refuses any type of helper we can get to assist him, so hoping he pulls through the dark time. He doesn’t like taking the medication so even though he says he takes it I have doubts. I’m praying for you that if you do start feeling the burn that you pursue the medication and hang with it until the internal irritation heals. Hang in there! You’re certainly not alone…..

Rich

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@californiazebra

@mir123 -- When I had the radiation at a cancer center, I was told their state-of-the-art equipment was highly specific in hitting only the target area. It didn't go too wide or deep so it wouldn't affect my esophagus or lungs and it didn't. My radiation didn't even make my skin burn (just pink) until somewhere after 20 treatments. My question would be how old is that equipment? Is there equipment available somewhere else that can deliver more targeted therapy?

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Thank you--that is an excellent question. The targeted spot is breast lymph node high up towards collar bone and very close to esophagus. Yesterday the tech showed me the scans and there is a discernible margin between the two. Not sure about age of equipment but will ask--good point. Thanks again.

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@dazman56

Hi, my dad just completed 6weeks of chemo and radiation (daily for 35 treatments) for an early stage 2 esophageal tumor. The last 2 weeks of treatments really got to him as his esophagus swelled pretty much to the point of closure so they inserted a stent and he also has the internal irritation causing the burn. Now, just shy of 2 weeks after the last treatment, he’s still experiencing the burning when eating or drinking and has lost a lot of weight. The doctor prescribed a liquid medication that coats everything so it makes eating/drinking somewhat bearable, but I’m hopeful that at the close of week 3 he starts feeling better. I live out of state and he’s alone and refuses any type of helper we can get to assist him, so hoping he pulls through the dark time. He doesn’t like taking the medication so even though he says he takes it I have doubts. I’m praying for you that if you do start feeling the burn that you pursue the medication and hang with it until the internal irritation heals. Hang in there! You’re certainly not alone…..

Rich

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Wishing your dad--and you--all the best. It sounds difficult, and hopefully can resolve positively. The distance also sounds difficult--but I'm sure your effort is helpful to him.

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@cmdw2600

I am sorry you have this (legitimate) concern. Where is the spot being radiated?

Best wishes to you, Cindy

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Breast cancer in a lymph node towards the collar bone, and actually I think fairly deep. Surgery has been confusing--the surgeon simply left it in. Then I was told it was difficult to reach surgically, and vascularly rich so dangerous in terms of bleeding. Then I was told to have surgery anyway. It has been confusing, and I've opted for just radiation. Hoping it misses the esophagus! And thanks so much for responding.

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@dazman56

Hi, my dad just completed 6weeks of chemo and radiation (daily for 35 treatments) for an early stage 2 esophageal tumor. The last 2 weeks of treatments really got to him as his esophagus swelled pretty much to the point of closure so they inserted a stent and he also has the internal irritation causing the burn. Now, just shy of 2 weeks after the last treatment, he’s still experiencing the burning when eating or drinking and has lost a lot of weight. The doctor prescribed a liquid medication that coats everything so it makes eating/drinking somewhat bearable, but I’m hopeful that at the close of week 3 he starts feeling better. I live out of state and he’s alone and refuses any type of helper we can get to assist him, so hoping he pulls through the dark time. He doesn’t like taking the medication so even though he says he takes it I have doubts. I’m praying for you that if you do start feeling the burn that you pursue the medication and hang with it until the internal irritation heals. Hang in there! You’re certainly not alone…..

Rich

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Thank you for supporting in this discussion, it sounds like your dad has been through it. I did ask the moderator to send this or maybe a they will just copy it to the head and neck group, where you can find support too.♥️

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@dazman56

Hi, my dad just completed 6weeks of chemo and radiation (daily for 35 treatments) for an early stage 2 esophageal tumor. The last 2 weeks of treatments really got to him as his esophagus swelled pretty much to the point of closure so they inserted a stent and he also has the internal irritation causing the burn. Now, just shy of 2 weeks after the last treatment, he’s still experiencing the burning when eating or drinking and has lost a lot of weight. The doctor prescribed a liquid medication that coats everything so it makes eating/drinking somewhat bearable, but I’m hopeful that at the close of week 3 he starts feeling better. I live out of state and he’s alone and refuses any type of helper we can get to assist him, so hoping he pulls through the dark time. He doesn’t like taking the medication so even though he says he takes it I have doubts. I’m praying for you that if you do start feeling the burn that you pursue the medication and hang with it until the internal irritation heals. Hang in there! You’re certainly not alone…..

Rich

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Hi @dazman56, Rich, radiation and esophageal cancer are tough. I'm sorry to hear he pushes back on accepting help. I think you'll appreciate joining the discussions in the esophageal cancer support group here:
- Esophageal Cancer https://connect.mayoclinic.org/group/esophageal-cancer/

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@mir123

Breast cancer in a lymph node towards the collar bone, and actually I think fairly deep. Surgery has been confusing--the surgeon simply left it in. Then I was told it was difficult to reach surgically, and vascularly rich so dangerous in terms of bleeding. Then I was told to have surgery anyway. It has been confusing, and I've opted for just radiation. Hoping it misses the esophagus! And thanks so much for responding.

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Hi again @mir123, when I read that the surgeon said he can't remove something, I again wonder if a different more experienced surgeon could? Maybe they'll all say the same thing and then you'll know for sure, but I remember when my dog had a big chest tumor and one vet told me he couldn't remove it due to location and that she might bleed to death. Then later when my former wonderful talented vet came back to town, she said yes there is more bleeding in that location, but she could remove it no problem. She also advised me it was just an unsightly fatty tumor and didn't need to be removed medically anyway so we let it be and the dog lived to be 16. Some surgeons are more skilled than others. Not sure if you're seeing a breast cancer surgeon or a general surgeon who has less breast cancer experience. Experience is a great predictor of success. The same holds true for cancer/teaching hospitals that draw the best talent and have the most experience with difficult cases vs. a community hospital that often tells you they've never seen that before.

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@californiazebra

Hi again @mir123, when I read that the surgeon said he can't remove something, I again wonder if a different more experienced surgeon could? Maybe they'll all say the same thing and then you'll know for sure, but I remember when my dog had a big chest tumor and one vet told me he couldn't remove it due to location and that she might bleed to death. Then later when my former wonderful talented vet came back to town, she said yes there is more bleeding in that location, but she could remove it no problem. She also advised me it was just an unsightly fatty tumor and didn't need to be removed medically anyway so we let it be and the dog lived to be 16. Some surgeons are more skilled than others. Not sure if you're seeing a breast cancer surgeon or a general surgeon who has less breast cancer experience. Experience is a great predictor of success. The same holds true for cancer/teaching hospitals that draw the best talent and have the most experience with difficult cases vs. a community hospital that often tells you they've never seen that before.

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You are right--experience is important. I've gotten opinions on my situation from Mayo, NYU, UNM, and locally...but since I'm not doing every treatment suggested I'm just limiting options. That is, additional surgery was suggested but I can't manage it physically or emotionally. I'm glad your dog lived a long life! Thanks for writing.

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