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Paget's disease of the bone and other inflammatory issues

Cancer | Last Active: May 6, 2023 | Replies (22)

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@ess77

@becsbuddy, @crikee, @colleenyoung, and all...I called this morning to Mayo rheumatology. The staff is setting an appointment with my rheumatologist to check on the wonky bloodwork...
iron TIBC, UIBC, saturation %, transferrin, lower ferritin level, and the skull ridges. It seems I have Paget's Disease re the skull ridges, but the doctor didn't go further than no fractures and referred me to Mayo.

So, I'm hopeful this will lead to a good understanding of these crazy results. As I mentioned, if there's nothing to be done, ok. But, I think there are issues to address and I want my iron levels and usage improved.

Thanks, Becky for the encouragement. You are a great Connect friend. I hope some of my issues help others. I'd love to know more about Paget's but haven't found any good recent information. Suggestions? Information?

Blessings, elizabeth

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Replies to "@becsbuddy, @crikee, @colleenyoung, and all...I called this morning to Mayo rheumatology. The staff is setting an..."

@ess77
Here is some information from the Mayo Clinic. I don’t know if you already seen this.
https://www.mayoclinic.org/diseases-conditions/pagets-disease-of-bone/symptoms-causes/syc-20350811
The information says that the incidence of Paget’s disease is decreasing and occurs mostly men. I’d love to hear what the rheumatologist says!
When will you learn more about all the bloodwork?

Any update, Elizabeth?