Sorry it has been so long since I posted this reply. I have been a little depressed about being sick for so long. One thing that is hard to describe to people is how expectations of life as healthy folks can interfere with feeling sick for months on end. I keep waiting for those "good days" and I guess I have them. But they fall far short of my expectations of what a "good day" should be. I have had two more rounds of chemo and am looking at the fourth round on Monday (4/24/23). After the fourth round, they will do a CT and I should have more information.

Pain has improved now that they have prescribed a long-term fentanyl patch. It was amazing to be pain free for periods of time. Made a huge difference in how desperate I felt. Still dealing with nausea, but it is easier to battle when you aren't deciding between feeling like a claw hammer is stuck in my back versus vomiting. Sometimes I just have to choose vomiting.

I've begun making plans with my family to move my treatment to Iowa and it is a lot. Over the past month it has become extremely clear that having a deep bench of support is really important. Thank you all for your posts - your replies here as well as on other posts. I appreciate you!

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