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Bob (@rllarocca)

Hairy Cell Leukemia

Blood Cancers & Disorders | Last Active: Apr 10 10:13pm | Replies (39)

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What can i expect? My husbands bone marrow biopsy just came back positive with Hairy Cell Leukemia. We meet with the Hematologist/Oncologist tomorrow to go over results. I am a nurse of 15 years but never worked with oncology. I want to know how to support him in this journey and what to expect. Thank you!

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Replies to "What can i expect? My husbands bone marrow biopsy just came back positive with Hairy Cell..."

@c1608 I am so sorry to hear of your husband’s diagnosis. Cancer is a very difficult time for everyone. But you can do it, and with your help, so can your husband. Right now, you can sit together and talk about how this ( going through treatment , etc) will change things. Your husband may want you to handle some things that he used to do. But, he may want to continue doing as much as he can. He needs to maintain some control.
You can also get a small 3-ring binder and start a journal where you’ll write down everything that’s said and your husband’s daily health.
As one nurse to another, i would recommend that you wear your ‘nurse hat’ when at doctor visits, when sitting in chemo room, etc. You’ll want to keep your eyes wide open, making sure everything goes smoothly. Once you get home, leave your nurse self in the car and become a wife again. Take it 1 day at a time! I was an oncology nurse, so you can ask me any questions.!
There is a Blood Cancers support group and you can probably find answers there.
Just click on the link and it will take you there.
Do you have any ideas of how you want to support him?

Hello and sorry to hear about your husband's diagnosis. I'm now in my 2nd remission and if all goes well in mid May, I won't need to see my oncologist for a few years until it rears it's ugly head again.
I just turned 68 last month and I hope to get close to 80 before I really need to worry. There are great stories of life with HCL. Please think posistive and wish your husband well.