Connect
← Return to Groups offer support for brain tumor survivors
Discussion
Groups offer support for brain tumor survivors
Brain Tumor | Last Active: Aug 5, 2016 | Replies (8)Comment receiving replies
I have been going to the monthly support group Brains Together For a Cure (BTFC) in Rochester, MN and have found it extremely beneficial. They always try to have one of the Mayo neuro oncology physicians there, also nursing staff from the department. We not only discuss current treatment options but it’s an open platform for patients and caregivers to have a chance to express any concerns they are having. Whatever question or concern you have there is likely someone there that has “been there, done that.” Whether you are recently diagnosed or 15 years out like I was before I joined…I would strongly recommend joining a support group. This one meets at Hope Lodge, 3rd Saturday of every month from 10-11:30.
Replies to "I have been going to the monthly support group Brains Together For a Cure (BTFC) in..."
Wish I had known. I flew to Mayo from Tucson, Az and spent a month in town, had three brain surgeries, finally completing the measles virus injection. I actually flew home on the 18th of June (3rd Saturday) and certainly would have attended the group that day before my flight around 645 pm. In Tucson there are very few brain cancer survivors so I have not found a group other than a generic terminal disease support through Tu Nidito. it would likely be helpful to share with brain cancer survivors.