Has anyone had a temporal lobectomy, resulting from epilepsy?

Posted by allie12345 @allie12345, Feb 13, 2012

Has anyone had a temporal lobectomy, resulting from epilepsy?

Interested in more discussions like this? Go to the Epilepsy & Seizures Support Group.

@kanaazpereira

Hello @brjudevo79,

Welcome to Connect. Your desire to go back to school, and continue your education is truly admirable!

I'd like to introduce you to @ahernandez @lovingtruth83 @dawn_giacabazi @bonnieh218 @robertjr @williamdj @carnation @juliehart4 @kevinkelley, a few Connect members who have discussed absence seizures or petit mal seizures, and medication, and I'm confident they will return with their insights.

Here are some discussion you may wish to view, and perhaps share your story as well:
– Have you encountered brain difficulties because of epilepsy/seizures? https://connect.mayoclinic.org/discussion/those-with-epilepsyseizures-have-you-encountered-any-brain-difficulties-because-of-that/
– Living with epilepsy - Introduce yourself & meet others https://connect.mayoclinic.org/discussion/living-with-epilepsy-introduce-yourself-meet-others/
– Epilepsy/seizure related https://connect.mayoclinic.org/discussion/epilepsyseizure-related/

I would also encourage you to take a look at this conversation, "New to Epilepsy!!" https://connect.mayoclinic.org/discussion/new-to-epilepsy/, where @debburrington @FaceNu have shared their concerns about Topamax (Topiramate).

@brjudevo79, do you use memory aids or brain training exercises to help with memory difficulties?

Jump to this post

what kind of memory aids are there or brain training exercises are there?

REPLY
@kanaazpereira

Hello @brjudevo79,

Welcome to Connect. Your desire to go back to school, and continue your education is truly admirable!

I'd like to introduce you to @ahernandez @lovingtruth83 @dawn_giacabazi @bonnieh218 @robertjr @williamdj @carnation @juliehart4 @kevinkelley, a few Connect members who have discussed absence seizures or petit mal seizures, and medication, and I'm confident they will return with their insights.

Here are some discussion you may wish to view, and perhaps share your story as well:
– Have you encountered brain difficulties because of epilepsy/seizures? https://connect.mayoclinic.org/discussion/those-with-epilepsyseizures-have-you-encountered-any-brain-difficulties-because-of-that/
– Living with epilepsy - Introduce yourself & meet others https://connect.mayoclinic.org/discussion/living-with-epilepsy-introduce-yourself-meet-others/
– Epilepsy/seizure related https://connect.mayoclinic.org/discussion/epilepsyseizure-related/

I would also encourage you to take a look at this conversation, "New to Epilepsy!!" https://connect.mayoclinic.org/discussion/new-to-epilepsy/, where @debburrington @FaceNu have shared their concerns about Topamax (Topiramate).

@brjudevo79, do you use memory aids or brain training exercises to help with memory difficulties?

Jump to this post

@brjudevo79 I found a list of helpful (and easy) things you can do here:
- Memory aids, reminders and brain training http://www.epilepsysociety.org.uk/memory-aids-reminders-and-brain-training#.VjOSirfntD8

What memory situation do you encounter most often and what trick do you use?

REPLY
@brjudevo79

HI Everyone, I have had seizures since I was 7. I am now 38. I have been seizure-free for the last 7 years. but my memory is horrible with the 3 meds that I am on. I am on keppra xr 750, topmax 200, & tegretol 400. I have been on lots of meds & have had a number of cat scans, mri's & eeg's but they can never pin point what is causing the petite seizures that last about 30 seconds. can someone help me with some advice. I want to go back to school really bad..but because my memory is so bad that when I went back 2000 I ended up dropping out because I could not handle it.....I want to go back now.....Please any advice would help. thanks

Jump to this post

I was on dilantin like 10 years ago. but they took me off of it. & put me on the combination that I am on now. Do any of the surgeries that are out there work?

REPLY
@brjudevo79

HI Everyone, I have had seizures since I was 7. I am now 38. I have been seizure-free for the last 7 years. but my memory is horrible with the 3 meds that I am on. I am on keppra xr 750, topmax 200, & tegretol 400. I have been on lots of meds & have had a number of cat scans, mri's & eeg's but they can never pin point what is causing the petite seizures that last about 30 seconds. can someone help me with some advice. I want to go back to school really bad..but because my memory is so bad that when I went back 2000 I ended up dropping out because I could not handle it.....I want to go back now.....Please any advice would help. thanks

Jump to this post

I had right temporal lobe surgery in 1983 at Mayo in Rochester, it works! Since then I’ve had no grand mal seizures. I was still having a few petit mal seizures. After a few years of trial and error, I was given Keppra for petit mal seizures which makes me totally seizure free since.
Hopefully this helps you with any decision making.

REPLY

Yes, surgery often is successful in stopping seizures or at least decreasing frequency or severity.
I have friends/acquaintances in England and two had Temporal Lobe surgery and their seizures stopped. One died about seven years after and is suspected to be a victim of SUDEP (Sudden Unexpected Death

REPLY
@jakedduck1

Yes, surgery often is successful in stopping seizures or at least decreasing frequency or severity.
I have friends/acquaintances in England and two had Temporal Lobe surgery and their seizures stopped. One died about seven years after and is suspected to be a victim of SUDEP (Sudden Unexpected Death

Jump to this post

Oops...posted to soon

REPLY

In Epilepsy.) I’m sorry but I lost my train of thought. Another all to common complication for people that have Epilepsy.

REPLY
@jakedduck1

Yes, surgery often is successful in stopping seizures or at least decreasing frequency or severity.
I have friends/acquaintances in England and two had Temporal Lobe surgery and their seizures stopped. One died about seven years after and is suspected to be a victim of SUDEP (Sudden Unexpected Death

Jump to this post

The rest of my post is gone

REPLY
Please sign in or register to post a reply.