Hello. I’m a mom with a daughter with Sclerosing Mesenteritis – diag at 14 (2008). She’s now had 17 abdominal surgeries later, multiple bowel obstructions, resections, and now TPN dependent, inpatient frequently, she’s 5’10” at just over 100# now, etc etc etc . . . anyway, we have a pretty great group of MP and SM people if you’re interested. It’s a private group and there are 57 members to date. I also have one of my kiddo’s docs on our group as well who’s been in several of her surgeries! Please write back and I can give you the info and add you to it.