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John L (@johnl1)

Chronic subjective dizziness

Ear, Nose & Throat (ENT) | Last Active: Nov 19, 2018 | Replies (37)

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I have been disabled by chronic dizziness since 2010. For me, I am convinced that Klonopin was part of the problem that fried my nervous system and started this nightmare. Check out the book Benzo-Wise: A Recovery Companion by V Baylissa Frederick. I only took .25, but it was nightmare getting off of it. I would never use it again. There are great support groups about the dangers of benzos. I, too, have seen so many types of doctors. The label of CSD seems like an easy out to blame anxiety for what is a complex physical issue.

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Replies to "I have been disabled by chronic dizziness since 2010. For me, I am convinced that Klonopin..."

Trying Zoloft. Just now getting to 100mg. Really nothing yet to share. My plan is to stick with Sertraline for 30 days, then I’ll share again.

Chronic dizziness is a terrible & sometimes disabling way to live. Have enduring this for 7 mos. some days are better than others. I have a arthritic neck & wonder if that could be a cause. Doc doesn’t think so. To have mri & cat scan wed & not looking forward to it – will need to medicate. I hope I get through it.!!

Yes, it is terrible. So is Meniere’s. Acceptance, was and still is a
struggle for me. But it is the one thing that allows me to move on. It is
beyond doctors to alleviate all suffering, and our thinking otherwise is
unproductive. It is just a part of life. It is difficult to start, but a
gratitude list helps. I’m grateful for my kids, grand kids, lichen that
grows on rocks, moss. My wife. And really many other things; it was not
always like this.

We all have to look for and use what works for us as individuals. This is
our purpose in life, at least a part of it.

Hoping you prosper,

Hello John,

Thank you for the response to my posts. My MRI that I had last week to check the arteries in my brain & neck came back okay. And while that is a good thing, I am still walking around with my “space” head & walking a little off kilter sometime.

I have not reached the point of acceptance. I would like a reason or a dx telling me what is causing this & why. Once in a while I will get a day that allows me to almost feel “normal”. I miss my life & feel bad for my husband.

I am glad for you that you have come to accept your issues. Thanks again.


I should probably add; my acceptance is not total, and it took time.
Started my journey in the 80’s. Went to an ER in 2008 and was referred to a
neurologist then ENT, cardiologist too. A couple of years ago it started
interfering with work. It’s been progressive. Just had another MRI, it came
back OK, I was disappointed. Besides CSD there is Meniere’s and a skull
malformation having an affect on the brain stem. And our cerrabellum also
plays a role with balance. Maybe in time, they’ll nail this thing down.
Keep on, keeping on.

Thank you so much for your input. It is a struggle for you too. My neck is so arthritic with 3 bulging disc that I find it hard to believe that it is not the culprit. But the experts says not.

I will keep pursuing & trying to go with the flow. Good luck to you.

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