Recently diagnosed with PNET Grade2

Hi..same me but the tumor was 20 cm..i did the procedure since 1 month and they removed 2/3 i
Of the pancreas and the spleen also..after the procedure 1 day after you will walk you will have a drain and they will remove on 5 days..for me i stayed 21 days in the hospital because i had fluid leaking one of the complications of this surgery now after one month i feel better and it remains small pain..

Great to hear you are doing well! My tumor is too close, probably ' glued' to my stomach, so I will have that removed (hopefully not all of it)! And will have a hysterectomy for endometrial cancer... Not fun.

Hi..since 2 months suddenly i discovered that i have PNET 20 cm so they removed 2/3 of the pancreas also the spleen..they told me that the tumor has metastased to some lymph nodes and they removed so no need for chemo ..my next follow up for MRI is after 5 months..please who had same case it can come again ?? Im just 30 no kids yet im so scared and i cannot plan any things for my future im just paralyzed and i stopped all my goals

I will pray for you is not easy i know..everything on god and try to br strong

Thank you! All is in God's hands now!

Hello @snd. I am sorry you are feeling scared and totally understand feeling like you are paralyzed. The fact that your doctors think they were able to removed the tumor from the lymph nodes, sounds promising.

You will notice that I moved your post into an existing discussion on PNET Grade 2 so that you can connect with @pavlina60 again. You can find your post here:
- Recently diagnosed with PNET Grade2: https://connect.mayoclinic.org/discussion/recently-diagnosed-with-pnet-grade2/

Are there any short-term goals between now and your next MRI you can focus on so you can feel like you are moving forward, at least somewhat?

My husband went in for heart valve surgery and the surgeon accidentally found 5cm NET on tip of his pancreas. A PET scan revealed multiple lymph nodes affected. It’s been a long wait since October and we are anxious to get the NET out in a few weeks. The surgeon at Cedars Sinai will perform surgery verses a biopsy first due to the size of the tumor. It’s been extremely stressful having to face this just after my husband lost his sister-in-law to pancreatic cancer in September. We are thankful he was diagnosed before it metastasized into other organs. Now that his heart has healed we are now faced with another challenge. I’m comforted knowing others are facing similar challenges. We don’t know if chemo will be prescribed after surgery.

@mwhitejasp, I can only imagine how stressful this is for you and your husband. But I'm glad that it was found and that it is operable and that there is no metastatsis.

When is the surgery? How is he doing? How are YOU doing?

In 1986 I had a Dermatofibrosarcoma removed from my left thigh with a wide recission. I had been feeling a mass in my leg and asking the doctor about it for over a year. I finaly insisted that he take it out because I could not stop feeling it and being unsure. Just because he said it was a fat tumor, I could not quite believe it (since I had a breast cancer when I was 36). You guessed it, the biopsy came back the above. It was decided not to do any additional treatment. Guess what, I am 92 and still here. I hope for the same results for you. Life is strange. Only God decides when we leave this earth He apparently wasn't ready for me yet. I will pray he will smile on you and grant you a very long life. God Bless and Keep you in his care.
Gina 5009