Connect
← Return to Neuroendocrine tumor: What tests are used for diagnosis?
Discussion
Neuroendocrine tumor: What tests are used for diagnosis?
Neuroendocrine Tumors (NETs) | Last Active: Feb 17, 2023 | Replies (37)Comment receiving replies
@terlato I was also diagnosed with POTS my recent emergency laparoscopy showed intestines adhesions and more than DIE II stuff in cervix and uterus bad cells… I’m scared that everything is being overshadowed cuz I had neuroendocrine tumor of my rectum 2019 and they say that my issues are DIE II (stage 4 endometriosis) and hemorrhoids. But those things look and feel bad maybe adenomyosis but no investigation is being made in those structures and nobody took biopsies of the tissue strangling my bowels or see under the omentum… my CA 19.9 been high, chromogranin A and D dimers Cardiolipin and more… bone scan more “degenerative changes not definitive focci” that wasn’t there and I’m still waiting for another scan but don’t know what to get I really wish I could get MRI PET they have fried me down here at Kissimmee I’m the local’s doctors and ERs.
Replies to "@terlato I was also diagnosed with POTS my recent emergency laparoscopy showed intestines adhesions and more..."
Connect
I pray all goes well for you. It is so frustrating. Years back I had cervical cancer and had a stroke I was 42 stroke, 43 cancer. Also had terrible hemorrhoids, had surgery, and such bad abdominal pain, that they decided it was my appendix so they took it out. But, before all this no one was listening to me! I had to go to California to get the diagnosis of cervical cancer.
You need to call your insurance company and tell them you are not getting the quality of care and that you need PET scan. I'm sure they can give you some information on how to go about it. I once had an issue and my insurance company helped and I got what I needed.
Please, don't give up and change doctors if you can. Many prayers coming your way.