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PKD kidneys removed at time of transplant
Transplants | Last Active: Mar 2, 2023 | Replies (42)Comment receiving replies
How long did you all have to wait after transplant to consider removing the PKD kidneys? I am just 3 months post transplant and am still having pain at times in the lower abdomen. And my cystic liver moved up from the surgery so I have pain from it pressing on my ribs in front and on the right side. Plus I have scar tissue from the Peritoneal catheter being pulled out. Did most of you also take 3-4 months to heal from the transplant? I still have lightheadedness too and get short of breath too. This is a much slower process of healing from the transplant than I ever was told or anticipated. I think many of my internal organs moved a bit from the adding the new kidney and I at times feel the pain more now from the kidney and liver cysts. I never felt pain from these cysts prior to transplant. Did others think their organs moved from the transplant? Thank you for your comments as they really help me. I live in the San Francisco bay area and got the transplant from CPMC, California Pacific Medical Center. Thank you and have a great day, BB
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Initially, I was supposed to have mine taken out 6 months after transplant. Then COVID happened. So we waited until things calmed down a bit, and I had mine removed 2 years after transplant. My understanding was that 6 months was a good time. Recovery was much slower than I expected, and certainly longer than most other people I talked to that had a transplant. Again, I think PKD is its own beast. I took more like 6 months to feel better. Truthfully, I did not start to really feel good until they got my meds lowered a bit, and I had both PKD kidneys out of my body. Then I started to heal for real.
Everyone's body is different and so the process is different for everyone. But most of your symptoms sound familiar and yes, all of those (dizziness, weakness, breathlessness, and flank pain) got much better for me with time and once I was PKD free.
Sending Blessings!