Thanks for the post @mary4 but as far as presenting on PMR, I'm just a messenger boy trying to help out 😂🙃 I learned a lot from this site and talking with other patients myself. I get as much from this site as all of you. This site was a gift for me and really helped with my second occurrence of PMR - 1-1/2 years to taper off vs the first time taking 3-1/2 years.

We do have a great presenter in @colleenyoung who does make the social media rounds with healthcare industry groups to let them know the benefits of Connect for patients and the healthcare industry.

I guess I am pretty fortunate. I live in Canada and have an excellent doctor who discovered my PMR. He stays constantly in touch with the rheumatologist and orders the tests for my inflammation, minimally, once per month.

He let me make the decision when to start the prednisone. We decided to go slowly up to 10, I have had bad side affects in the past. I have been on 10 mg for two months and all my symptoms have gone. We decided that 1 month more on 10mg and then go down a mg a month until I get to 1 or 2 mg.

I guess what I am saying with all this is that there are still some doctors that really care, and listen with empathy. Ours has been and is a shared PMR
journey.

I have been very active with all my health issues and take action. I have read some very good suggestions here which I am looking forward to implementing. I live on my own so I had to change some things so that I could take care of myself; like buying a grabber, a bench to shower with and preparing meals sitting down instead of standing to name a few. Thanks for your help.

@mary4 keep ranting! looking into medicinal mushroom use as an option for supporting treatment to somatuline depot for my LiverNET. Treatments due to start soon. In active education mode. thank you