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Lanreotide Manufacturers: anyone have experience with either?
Neuroendocrine Tumors (NETs) | Last Active: Mar 18, 2023 | Replies (53)Comment receiving replies
I am new to Lanreotide injections - same as Somatuline Depot monthly injections I get for NET Carcinoid tumors with Chromogranin A blood test at 586.
1st injection Nov 14,22
and the 11/21/22 Chromogranin A blood test came back at 269.
Today 01/04/23 I had another Chromogranin A blood test. Let me know if my results may be of help to you.
Side effects of shot:
Very hard stools for first week following injection (Laxative + 2 stool softeners + Metamucil at bedtime helps).
Fatigue worse first week following shot, but remains to lesser degree at week 3-4.
I eat very small meals with snacks of cracker + Monterrey Jack cheese, yoplait Light yogurt, smoothies, peeled apple, etc… however I am diabetic so take that under consideration. Eating a larger amount always makes me feel bad.
Mark, I am rather new to this treatment (dx 10/22) and am very interested in learning about other patients responses to Lanreotide treatment for NET Carcinoid tumors. Please let me know how you are doing.
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Many thanks for your concise response - I am posting on behalf of my wife Sharon:
1. Can you provide the place / company doing your Chromogranin testing? Sharon's blood sample is sent to / tested within the Mayo Clinic - I suspect in MN.
2. She recently had a spike in chromogranin levels [significantly higher than the 93 ng/ml upper limit] - we discovered that she had been given the generic product (Cipla) for several of her monthly injections. At this time we do not know if there is a correlation but will continue to question.
3. I understand that the lab / procedures used must be the same in order to do comparison of chromogranin levels from one patient to another.
Thanks again for your response !