← Return to Post allogeneic stem cell transplant (SCT) Digestive Issues

Discussion
Comment receiving replies
@loribmt

It’s my pleasure to help walk along this journey with you. Your husband’s story sounds a lot like mine. Just 3 weeks before my diagnosis I had been healthy, energetic, no sign of any issues. Then a steep plummet in 3 weeks time and finally a diagnosis of Acute Myeloid Leukemia with mutations that made relapse likely. So that necessitated the allogenic transplant.
Having this second chance at life is certainly a gift like no other. It comes with some challenges that’s for sure! But it is so worth the effort to keep forging onward. The ‘bad’ days will become less and less. I promise ☺️

It’s great your son lives in the area! It helps to have some snippets of normalcy during the recovery period, especially when you’re away from home so long.
Your husband is doing great with 48 to 60 oz of water daily. Initially I had such a hard time even keeping a glass of water down at all. But it is so vital to keeping the body healthy, hydrated, the plumbing works better and the toxins get flushed through.

Let your husband know getting enough food will eventually stop being so challenging. My husband jumped through hoops trying to get me to eat. I mostly just nibbled on anything that seemed palatable. I still had issues with loss of taste and tastebuds from all the chemo from the AML so textures were an issue too. But now, I eat everything! 😅
His energy and stamina will return too. I’m back to 7-8 miles daily and no limit to my activities. Your husband will be back in no time!
Thought you and your husband might enjoy a little story written about a young woman, whom I mentored last year, and myself with our shared experience with AML and our BMT journey.
https://connect.mayoclinic.org/blog/about-connect/newsfeed-post/mayo-clinic-connect-brings-together-2-women-with-leukemia-46-years-apart/

What cancer derailed your husband last year?

Jump to this post


Replies to "It’s my pleasure to help walk along this journey with you. Your husband’s story sounds a..."

@loribmt Mark was diagnosed with Myelodysplastic Syndrome, a blood cancer, last May. Love the article you shared! I had read that prior and now I know this was you. Very inspiring that you are walking long distances now. We plan to continue hiking in the future! Jamie