Help

Posted by katstandard @katstandard, Dec 20, 2022

Ok I think I’m going insane and my doctor isn’t listening to me in the past 4 months I have noticed some very serious changes I can’t smell food or eat without feeling sick or vomiting. I get tired like bone tired dizzy weak. I have very bad migraines that paralyze me and keep me from doing things. My body has started muscle spasms that are very painful. Last but not least I have been changing I cry for no reason at all or get angry like my emotions are everywhere. Before it’s asked no I’m not pregnant hysterectomy. Had mris cat scans exams etc dr says nothings wrong with me went to psychology and they say other than a little depression I’m fine I’m going insane and don’t know what to do and feel like I’m drowning my whole family friends coworkers are noticing it’s affecting everything I do. Any advice on what I’m missing. Please feeling crazy

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Please google SS. It is a very rare neurological condition. I see that you have some of the symptoms. Contact Dr. Kumar and Dr. Marsh at Mayo Clinic Minnesota. They are experts on SS. Please don’t consult anyone that is not knowable about SS. I will pray for you and all that are suffering.

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Steve, the best thing I've done for myself this past year is switch to new PCP, neurosurgeon, pain management doctor, and gastroenterologist. I'm getting real treatments from each one, not just bandaids and pats on the head. Please consider switching.

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You need to find better doctors. I had the same issue. You're not crazy.

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@stevegrinstead

Please google SS. It is a very rare neurological condition. I see that you have some of the symptoms. Contact Dr. Kumar and Dr. Marsh at Mayo Clinic Minnesota. They are experts on SS. Please don’t consult anyone that is not knowable about SS. I will pray for you and all that are suffering.

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What is SS please

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SS is superficial siderosis. Go to Dr Google.

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