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NIH-All of Us Study & Rare Diseases Clinical Research Network

Just Want to Talk | Last Active: Jun 7, 2023 | Replies (19)
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@dbeshears1

I’ve been getting invitations to join “All of Us”. I had not heard of this until yesterday, and as I googled it, it sounds like a legitimate opportunity for health research by the NIH. They offer genetic testing etc as part of the research if interested , but ask you to volunteer your medical records by giving them electronic access. Anyway, my question for the group is: does anyone have experience or intimate knowledge about this program, and have thoughts about how it might ever help us or others in the long run?

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Replies to "I’ve been getting invitations to join “All of Us”. I had not heard of this until..."
Colleen Young, Connect Director | @colleenyoung | Dec 17, 2022

Hi Debbie, I moved your message about the NIH All of Us Research Program to this existing discussion that @Erinmfs started.
- NIH-All of Us Study & Rare Diseases Clinical Research Network https://connect.mayoclinic.org/discussion/www-rarediseasesnetwork-org/

For anyone interested in learning more about the study, visit https://allofus.nih.gov/

The All of Us Research Program is inviting one million people across the U.S. to help build one of the most diverse health databases in history. Researchers will use the data to learn how our biology, lifestyle, and environment affect health. This may one day help them find ways to treat and prevent disease.

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