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debbie d (@debbied1)

Mystery illness

Digestive Health | Last Active: Nov 6, 2012 | Replies (7)

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Except the weight loss I have many of your symptoms. Mine started at least a couple years ago. I’m sick to my stomach all the time, I have a lot of pain in my stomach/abdomen, everything can set it off, including drinking water. I too have had many tests including an Octrio(sp) Scan and a MIBG scan with the outcome of no tumors. While that is good news it doesn’t help.
On top of that ALL the doctors can say is “Go to the Mayo Clinic”. That is a total cop out in my opinion as well as bullshit. I wish I could get away with walking from my problems by telling people to go somewhere else.

I’m at the end of my rope.

What are your next steps?

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Replies to "Except the weight loss I have many of your symptoms. Mine started at least a couple..."

I have just taken yet another lab to send down to Mayo. My Doc. has been wonderful and has not given up. I guess I will wait to see what ‘s next in his opinion. Sorry to hear about your troubles, sure is depressing isn’t it?
I feel like a wimp most of the time because I look OK most of the time.

My husband and I have thought that it is some sort of a bug from the very beginning. Thanks for your concern.

Has your doctor suggested the 24hour urine test? That may help rule out any kind of tumor.

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