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HER2 positive research trial TPIV100

Breast Cancer | Last Active: Nov 24, 2022 | Replies (6)

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@auntieoakley

Hello @zeerj Wow, if I had this option, I personally would do it. I bet there are others who might not but here is my thinking.
A vaccination has never hurt me or anyone I personally know beyond the normal aches and pains of building an immunity response. Basically it can’t hurt and it might help.
They gave it to 20 people just to make sure it was safe, now they need to find out how effective it is. How cool would it be to find out it is effective and you were part of the trial that ushered in a new vaccine for breast cancer to help thousands of women a year diagnosed with her2 breast cancer. When I was originally diagnosed 18 years ago, her2 patients were mostly precluded from all trials because we had poorer outcomes.
If your clinic is doing trials, they are probably not the only clinic doing that same trial. You could ask for the data, also it might be a double blind where you are not really sure you get the vaccine or not, I would ask lots of questions.
Are you leaning in or out?

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I hope you don’t mind me asking, it sounds you had her2+, if so, do you mind sharing whether you had mastectomy and reconstruction? Also can you share the treatment you had and the stage at diagnosis? I’m always looking for positive stories. 🙂