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What testing should I look forward to be properly tested for MCAS
Autoimmune Diseases | Last Active: Sep 3, 2023 | Replies (45)Comment receiving replies
I've never taken/been Rxed Ketotifen but here's an ironic twist. I had a severe adverse reaction to Singulair. Two days, yes, just two days on Montelukast and I suffered dramatic vertigo for the first time in my life. Almost fell down a flight of stairs at home as I started to black out from my head spinning. Called my Allergist's office and someon on her staff said, "No, vertigo is not a side effect." Well... I'm super in touch with my body, have had exactly zero imagined events, no psychosomatic predilections, the opposite of a hypochondriac, reality based. I felt what I felt. I experienced what I experienced. I did a super basic search on the Internet and learned that one of the side effects of Montelukast is...
VERTIGO! Different from standard dizziness. So, nyah, nyah, nyah, nyah, nyah! As usual, the patient knows more than the medical "professionals."
Trust your body! Listen to your body. You are you!
Replies to "I've never taken/been Rxed Ketotifen but here's an ironic twist. I had a severe adverse reaction..."
I totally get it. My most common symptom when my mast cells are angry is tremulousness, also lot of gut and bladder issues, besides asthma and allergies. When I tried Allegra and then Claritin, I had a lot more trembling, so back to Zyrtec as my body was "used to it." When I had Covid vaccine, I had dizziness for 2-3 weeks. Doctors still don't know all of MCAS symptoms, and they seem to change over time and everyone is different! The Singulair might be aggravating my gut as I've had lot more cramping. Everyone has to pay attention to their own body, ignore nay-say doctors. LOL I'm positive your vertigo was a mast cell reaction.
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@frenchie333 Thanks for sharing! I can’t even count how many times I’ve had a reaction to medication, I tell the doctor and they say that’s not a possible reaction. Then I find out online it is. My head is spinning from what is happening in health care.