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Pachymeningitis: Anyone else?

Brain & Nervous System | Last Active: Oct 4, 2023 | Replies (104)

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@lphillips

Thank you for your information! I am glad to hear that the Rituximab infusions have helped you. The inflammation in my husband's dura seems to affect his left side the most. He feels as if he will fall to the left or backwards when standing. He also has had some numbness in the left side of his face. Waiting patiently for our appt in March.

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Replies to "Thank you for your information! I am glad to hear that the Rituximab infusions have helped..."

@Iphillips. I also had numbness on my face that started on the right side above my cheeks then slowly travelled towards my forehead and then to the left side of my face. It went away gradually as well after the 4th and final rituximab once a week infusion. I started to feel ‘normal’ again probably two weeks after the last infusion back in July 2020. There is hope. I understand how he feels since we look okay from looking at us but we don’t feel well at all. The balance issue especially when walking or standing up is scary too. I tripped and fell a few times. Be careful and listen to your body when tired get as much rest as possible. I kept busy doing some brain games on line. I downloaded a free version of Lumosity and also like crossword puzzles and sudoku. Take care. Contact me anytime. Keep us posted on your husband’s March appointment.