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Pathology with close margins-ADH or DCIS

Breast Cancer | Last Active: Nov 1, 2022 | Replies (6)

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@khauff

@bestpommom First let me say I am so sorry to hear that you are having to deal with all of this. ADH alone does not necessarily need to come out. Although some recommend it comes out because if it is found on a biopsy DCIS can still be hiding so they will recommend taking the whole thing out so they can make sure there is nothing else. Other clinics will take the watch and wait approach. It is completely up to you though on what you feel comfortable doing. If they sent the biopsy away for a second opinion I would wait for that opinion and see what that comes back with. Usually with ADH radiation is not involved only surgery if that is what you chose as ADH is not cancer. If it is DCIS then yes you would want to remove it and do radiation. Will you be doing Chemotherapy also for the IDC or not? What kind of monitoring will they be doing after to make sure nothing comes back? Will you be on any Aromatase inhibitors post radiation/surgery? Hugs to you!

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Replies to "@bestpommom First let me say I am so sorry to hear that you are having to..."

Thank you for your response. I will not be doing chemotherapy as my Mammaprint showed very low risk, less than 1% chance of reoccurrence and chemo would not be of any help in my case. I was planning on doing the recommended 16 rounds of radiation. I am less than two weeks out from my surgery. I have a video call with my Oncologist tomorrow to discuss my pathology and I assume Letrozol which she is recommending I take since my cancer was 100% estrogen driven and 90% progesterone fed. I was on HRT when I got cancer. I stopped taking that when I found out there was a problem. I’ve done a lot of reading on ADH found during surgical excision and I’m a little worried about what else may be lurking in my breast or I’m looking at doing this all over again in the future. I don’t yet know how the aromatase inhibitors will affect me or how I will feel on them. I can totally see why people just get a mastectomy and be done with it.